I have been to many Derms to obtain a difinitive diagnosis, and yet to receive one. My scalp has been tested for fungus and was negative. My entire scalp, wherever there is hair, feels like granulated sugar, and, at times, have open lesions that bleed and ooze clear liquid. The follicles on my arms are raised and, both my arms and when I rub my arms and shake my hair, tiny, what look like tiny pieces of clear to white thread float off. It is extremely embarrassing because I look like I am covered in dust. The top of my legs burn and and the follicles are also enlarged. I put Aveeno lotion on my legs & arms every night, and it doesn't help. During the past year and a half, of trying to obtain a diagnosis, I have lost my sense of smell and taste, and I have had many ear infections. I also have tiny clear blisters in my mouth, and the area around my mouth, becomes inflammed, and burns. I can't help but believe that all of this is related, since I was a very healthy woman. I was treated for bronchitis, I believe that is when this began, and I know I lost my sense of smell & taste, right after that. The most recent Derm prescribed a shampoo with a steroid, but that isn't helping, and he recommended I see an internist. I am really worried, because I am losing my hair, all over my scalp, and I don't know what is happening to me, internally, since I am breathing this stuff in. Do you have any idea what this could be, and do you recommend I see another Derm, or an internist? The Derms I see, don't even look at my scalp, they just try different topical & oral medications.....no additional tests other than the fungus test.