leukocytoclastic vasculitis

[trentwhitlock]

For roughly ten years I have been dealing with leukocytoclastic vasculitis.  This diagnosis was concluded thru biopsy several years ago.  I have also seen an allergist....he concluded that he would not be able to pin down what may be triggering my immune system response thru allergy testing.  I am now to the point that i have a continuous reoccurance of red spots primarily on my legs and feet........as existing spots fade to a light brown, new ones reappear.  I do not have any health issues, rarely get sick, have never smoked, don't drink, and eat a somewhat healthy diet.  I have spent the last five years searching for remedies / mental relief from this condition.  From talking to several doctors and researching this condition, I am drawing a conclusion that nothing can be done for my condition.  I am simply writing to see if you have any suggestions that may improve my condition, or if you could locate a doctor somewhere on this planet that specializes in Leukocytoclastic vasculitis.  If such a doctor exists, I am ready to travel anywhere in the world...if there are answers out ther to the mystery of Leukocytoclastic Vasculitis.
Any help / info will be appreciated


This discussion is related to Leukocytoclastic Vasculitis.

[Zagh]

Hi,I started showing symptoms of LV 9yrs ago and was diagnosed 4 yes ago. Went for a hair analysis test, and found out that I was wheat gluten and taramine sensitive. Since avoiding these foods I've had very few to no outbreaks.

[Zagh]

Hi, I've also been diagnosed with the this condition. I've noticed that when I cut out wheat/gluten from my diet for a few months, I don't get any breakouts. A homeopathic pharmacist diagnosed me as also being taramine and wheat/gluten sensitive. He said these foods in certain people can act as triggers for auto immune diseases.

[Isidor]

Listen my friend!
I have this for  over 10 years!
After 3 bio.
It comes every year or 2 back.
I'm getting Medrol of 16mm ..twice a day ,morning and night for 2 weeks.
After I get half twice a day for 7 days.
After that a get 1/4 twice a day for 7 days!
And I'm done for the year.
Remember no alcohol at all ,the time of taking these pils.
There aren't expensive and you will find your best friend!

[penbilsam]

I was diagnosed with VV Dec 2014. Alot of my spots are on my feet and now they are turning to blisters. I'm currently on medical leave for the fact I can't wear shoes. Doctor believes mine was triggered by Naproxon (Aleve). Stopped taking Aleve spots are clearing up. I'm scared of another outbreak. Need some idea on what to do.

[ANDREA0026]

Hey can you help me more about curing vasculitis. I have it since May this year. please Im begging you. I want to heal it before it get worsen. Thank you.

[ANDREA0026]

Hey can you help me more about curing vasculitis. I have it since May this year. please Im begging you. I want to heal it before it get worsen. Thamk you.

[16melissa]

I was diagnosed with leukocytoclastic vasculitis in 2007. When mine started I got a rash all over my hips, legs, and feet. I got a biopsy. I found that any type of stress makes it worse. Too cold, hot, exercise, mental stress, etc. I can't even walk through a department store due to my condition gets worse. Now it's on my kidneys causing blood in my urine. I had a kidney biopsy in 2011 and the result was that it is now destroying my kidneys. The way it was explained to me was my immune system is attacking my kidneys. Very many little terrorist are biting little bites from my kidneys. I have protein, red and white blood cells in my urine due to this. This causes high blood pressure and I believe if I don't find a cure this disease will destroy my organs. Help

[16melissa]

I was diagnosed with leukocytoclastic vasculitis in 2007. When mine started I got a rash all over my hips, legs, and feet. I got a biopsy. I found that any type of stress makes it worse. Too cold, hot, exercise, mental stress, etc. I can't even walk through a department store due to my condition gets worse. Now it's on my kidneys causing blood in my urine. I had a kidney biopsy in 2011 and the result was that it is now destroying my kidneys. The way it was explained to me was my immune system is attacking my kidneys. Very many little terrorist are biting little bites from my kidneys. I have protein, red and white blood cells in my urine due to this. This causes high blood pressure and I believe if I don't find a cure this disease will destroy my organs. Help

[ragirlsue]

I also have L.V.my most recent cure was from Rituxan which I was having for my R. A. flair. they also gave me 100mgs. of prednisone so I am not sure which medication worked but it's gone and in only 3 days. Good luck to all. I have 2 infusions every 6months 2 weeks apart. I must add that I also used fluocinonide cream .05% (steroid cream) hope all of you find relief.  ragirlsue

[ALM2000]

After reading about Liquid Coral Calcium, it makes complete sense that this could be a major benefit.  The meds the doctors put me on were for cancer patients and it indicates this is good for cancer patients.  It minimizes acidity and aids the easy digestion of food.  It also helps alleviate pain by pushing up the pH level of the body. This supplement also helps cleanse the liver, kidneys and intestines while boosting the immune system as it breaks down heavy metals in the body.

Read more: http://www.ehow.com/about_5157916_benefits-liquid-coral-calcium.html#ixzz2sSrAOEQO

This is something I'm going to try!

[ALM2000]

I have Leukocytoclastic Vasculitis and have for over 15 years now.  The first time I had an outbreak, it lasted a year, then went away.  They had not figured out what it was at that time.  4 years later, I had it again and worse than ever.  I could barely walk and the outbreaks were over my entire body.  I had seen over 100 doctors and none of them really knew anything about it.  They kept taking pictures for classroom study.  And they that just kept putting me on meds and increasing the meds which didn't work.  Not even the steroids for any length of time.  As soon as I stopped taking them, it was back.  The doctors said there would be no way to figure out whether I was eating something that was triggering it or an allergy or anything.  I do have many allergies to medications, including penicillin and sulfates.  

Finally, at someone's suggestion, I went to an acupuncturist.  It relieved a lot of the pain right away and I could walk.  The symptoms continued getting better.  Plus, on my very first appointment, she immediately gave me a list of foods to stay away from without me even asking.  I had told her I had been asking the doctors for the information and she said they really don't know much about the impacts of foods on your body.  Basically, you have to stay away from anything acidy and sugars.  Which means, no red sauce, most fruits, wine, no spicy foods, no desserts, etc., etc., etc..  And, drink lots of water!  

When I do all of that, I do really well.  When I don't, I get a breakout.  I never have red sauce anymore, it's just not worth it.  I rarely have chili and I'm thinking I may need to completely remove that as well.  

When I do have a breakout, I take a lot of Advil.  It worked a lot better than any of the meds the doctors gave me with very little risk to my organs.  I'm talking a lot of Advil.  Back when I could barely walk, I was taking 6-8 Advil every 3-4 hours so I could walk.  I had told the doctors I was doing that and they all said it was much better than the medications they were giving me as far as side effects and risks.  

I haven't taken Advil in months and haven't been to the acupuncturist in years and I can keep it pretty much under control.  

I never though I'd ever see an acupuncturist my entire life and thought it was crazy.  However, when you are in so much continual pain and have no hope in the doctors figuring out what to do, you will try anything!  And, I couldn't be happier that I did.  If you find a really good one, they can cure all kinds of things...without medication!

[kittykatkate136]

you all do know that something triggers this you haf'to find out what this is . something cause's it. I'm in remmision right now and was feeling really great. I know one of my triggers is sugar , If water would cure you then I would be cured thats all I drink.You could have lyme disease or you could have gotten bitten by a flea off a cat and that disease is called borela. there ' are web site s on this but they want test  only in California at a lab it's IGNEX theres a Clinic in Raleigh NC who treats you with antibioctic therepy . I will put the names on shortly.  what we have are side effects of these two disease this is a very exspensive . I see my family doctor and my derm and I'm scheduled to have blood work to make sure that it has not gone into any of my organs. I'm also going to start juicing for 60 days will let you all know how I'm doing.

[kittykatkate136]

   I know what you are saying I've been there My doctor tells me that soimething triggers this. you have to figure out what, I know it sounds crazy  Ive had it since 2010 and it's really changed my life . it went into remission for 6months and when it came back  I  was on crutches my right foot and leg are effected more. I take predisone I take antibioctics and I truly believe that if you could find a DR to give you a zpack for 2 months you would get better not cured but able to be able tobe a normal person. i've had 4 zpacks got infection and my foot wouldn't clear up good luck.

[beegee1290]

I have Acute Lymphasitic Vasculitis and get the same they gave me DAPSONE and it simes to help see your doctor and ask about this there are a number of poeple on this drug who have vaculilis illnesses

[ho13]

Dear veronica08,

I interested with your experience to cure the problem of LV, I have this specially on my legs, red dots color.
I am a lady 54 yo, I have been with LV since I was 18 yo.
So many medicines I have had tried before. For a few years they gone..., but they come back, and back again...
I feel give up, stressful and sadly every time when I look my legs!!!...
Could you please tell me, you taken LIQUID coral calcium, how about the TABLET coral calcium, is this the same work?... What the different between Coral Calcium and Normal Calcium, like a Caltrate Plus?... (Caltrate Plus with 400IU Vitamin D & Minerals contains 600mg elemental calcium and now with 400IU of vitamin D in each tablet).
For how long I must take this calcium?... and When the results I can see?...

Thank you very much for your answer and helping me.

Kindest regards,
ho13
Perth
Australia.
  

[KimberXXX]

I also have leukocytoclastic vasculits and have been trying to find natural cures. Thank you all for posting. Any help and suggestions are appreciated. To date I haven't found anything that helps. I was free from the outbreaks for aprox 5 years and it has been reoccurring since September

[mausy3]

I have also been diagnosed with LV, had it now for over 20 years and the rash is now up to my waist.  As soon as one rash fades another appears.  I have tried the elimination diet, I dont drink or smoke and eat healthy.   The doctors have no idea what triggers it.   Can you tell me more about this liquid coral calcium and the side effects etc. I do think stress may play a part in this disease but any information would be a great help.  Thaniks.  mausy3

[Kate4862]

I am very interested in your comment about curing your vasculitis - can you give me more info on it? Thank you.

[curemybrother]

Trying to help my brother with his LV which is so severe that he almost lost his legs over it.   The swelling is so bad that fluid oozes out of his legs.   the soars that he forms almost overnight is the size of baseballs and when they open up, they expose the bone.  His legs are as scared up as a burn victom.   I haven't heard many others describe it this way.   Do you think he may have a different problem other than LV?   He is only 50 years old and is 100% disabled and has been for 10 years now.  Any ideas at all?  

[beacon927]

I am interested to hear that you think diet can help?  Is it just by avoiding additives or anything else?  

[ngeremesz]

I was diagnosed with this disease and have been trying to find a natural way to cure it.  I don't want to have to deal with the side affects of medication.  I'm not on any meds, but I am over weight.  I believe this came about due to the amount of food additives/chemicals I take in.  It's sad to see how much additives/chemicals are put into the food we eat.  I've been trying to pay close attention to what I eat and it seems to help but I still break out.  From what I've been reading, it almost sounds like this is an autoimmune disease.  Any suggestions as to what I can do naturally to cure this, is greatly appreciated.  Do you think by boosting my immune system would help?

[beacon927]

My symptoms were kept under control for several years by cyclosporin, but now I have stopped responding to that.

Why should coral calcium work?

[LV313]

I was diagnosed several years ago and was also told that there was no cure. I sought a second opinion and found a doctor that specialised in brain fuels. He tried me out on Lexapro, not as a cure for depression, but as a way to increase the brain fuel serotonin. From the first day I started taking them, I have been much better. I have had to increase them over time, but am now at a point where I believe I have reached the best balance. Basically what happens is that the brain thinks there is something wrong so tells the immune system to work overtime. This results in the problems associated with LV. Now I only get mild symptoms when I am very run down or am pushing myself too hard mentally. I am not sure that this is a cure for all to look at, but it has helped me tremendously. As for the Coral Calcium idea, I would love to learn more as brain fuel drugs can have some unwanted side effects such as weight gain - although this is a minor issue compared with the problem of LV.

[veronica08]

I was recently diagnosed with Leukocytoclastic Vasculitis. They also told me that there was no cure. I did not accept that answer. I searched to high heavens for answers. I found 2 things, that in my opinion cured my vasculitis, let me say again CURED. I replaced all my liquid in take with water, ONLY DRANK WATER. And finally I take 2 tablespoons of liquid coral calcium a day. These two things have cured my vascultis. Do not take any steroid shots, pills, or creams, they cause more harm than good. Understand your illness then address it, there is not quick fix.