Hello, Mary. Congratulations on taking care of yourself so well for so long. I'm not a medical professional, just the parent of a kid with diabetes. The arthrofibrosis descriptions I've seen say that it's a complication of recent surgeries or injuries, but you don't mention that, only that it's after you do some simple activity. What connection between your symptoms and that condition did the orthopedic specialist give you?
I can't find anything diabetes related for that condition, much less anything that talks about long term care, so I'm not sure I'm going to be any help. I'd like to toss this out to everyone else to see if they have any ideas.
Thanks for your input! The arthrofibrosis, per the orthopedic consultant, is due to my long-term diabetes (due to collagen issues?). He said "I see it all the time". However, my research has resulted in the same outcome as yours...that arthrofibrosis can occur following trauma or surgery.
I have had left hip surgery (impingement) and bilateral shoulder surgery (impingement in both), but remotely from the onset of symptoms (not to mention that the -fibrosis is also in joints without surgical intervention).
Joint issues related to connective tissues are common in diabetes. Examples are trigger finger (stenosing tenosynovitis) and frozen shoulder (adhesive capsulitis), both of which I have experienced after 40+ years as a type 1. Here is some information on the conditions we are at risk for. http://clinical.diabetesjournals.org/cgi/content/full/19/3/132
Good BG levels now are positive, and have helped me mitigate my many complications, but even with the best control (and in our early years, the best available was poor by today
Thanks! I will search the link you provided. I am a rheumatology nurse practitioner and am familiar with numerous joint and connective tissue medical conditions. However, my boss, a rheumatologist for > 40 years, has not seen the type of fibrosis I have. I have seen and treated trigger fingers as well as carpal tunnel, and other rheumatologic complications of diabetes (types 1 and 2), but no one in my hospital (a teaching hospital in the midwest) seems to know what's going on with my joints. Hurry up and wait. :) Thanks again!
Thanks, Larry! I've got another link to add to my information arsenal!