Stomach pain and Diabetes

[Michalo]

My child often complains of stomach aches - which I can relate it to having a low.  However, once in a while (since he's been diagnosed 6 years ago) he has bad pain just below his belly button and this last Saturday was the first time I've seen him bent over.  Although by the time we see a dr. the pain is gone no one seems overly concerned but it's not normal.  Has any one had this and what is the cause and what can we do to eliminate this happening again.  Something tells me it's in relation to his Diabetes but am not certain.

[Super_sally888]

Hello.  How good is her blood sugar control?  What is her hba1c?

High blood sugars can affect the body's ability to digest food - so it may be related to this?

Worth trying to eliminate gluten.  The testing for celiac has a high rate of false negatives.  The only sure way to determine is by an elimination diet (strict probably for at least 2 months, followed by a challenge).

You can google Bernstein Diabetes University (it is on u-tube).  He has some sessions about blood sugar in children.

Best wishes.

[Kmmitchct]

Our daughter is in a similar situation. Type 1 since age 5, now 9, and severe abdomen pain, mostly upper abdomen, pretty much all the time but worse right after eating. Have done blood tests, tests on stool, scope, emptying scan, ultrasound, etc I guess we will try eliminating gluten and dairy next but tests showed she was not intolerant to them. Many of the posts from above are years old. Curious if anyone can provide an update on whether the cause was determined or if a treatment was identified? Thanks

[Jodessy]

Cheryl, my son is 9 and type 1 for over 6 years. It's not the honeymoon phase. I feel exactly like you, just frustrated with no answers yet like you said so many children with diabetes suffer with the stomache pain. How is it with all these qualified doctors NO one has thought to study the reason this happens. My son started having pains but we're random. Tests done nothing but partial back up in colon. (Not too significant) takes generic miralax powder for any constipation. Yet still has doubling over pain. I feel like you because it's an invisible problem and feel like it's not believed or taken seriously enough. Yet again, are all type 1s who have nothing in common, don't know each other, making this up. NO! Hang in there, it's a very difficult disease with many twists and turns it is really nice though when you know your not alone.

[Mooogie]

I was wondering if you had received any insight into your son's condition?  My son has suffered from stomach aches for several years prior to his T1 diagnoses in 7/12 and the pains have only worsened since his diagnoses.  We have been sent to many different doctors and my son has undergone many tests with no answers.  The only test pending is an endoscopy.  We have experimented with diet and various medicines that have been prescribed and he still has no relief.  It is reassuring to see that he is not the only T1 child with these symptoms and I am not the only parent frustrated with seeing my child in pain and having no way to help him.

[ALMOD]

Hi- my 12 yr old son was diagnosed with T1D Oct 7, 2012. For the most part he is doing exceptionally well.  However, he has complained about a severe pain in his stomach on several occasions.  During the times of this severe pain his BS is normal and there are no signs of Ketones.  I spoke to his Endo and he gave some of the same answers listed by many other parents on this site. I am now in the process of scheduling him an appointment with his Pediatrician to test his blood. Thank you all for the valuable insight of things to look for with his bloo testing.  For I was not aware of Celiac or chromes disease as it relates to T1D.  I want to encourage everyone to keep fighting and posting.  Together we will find a cure....God Bless you ALL!

[Dgilchrist]

My 8 year old was diagnosed type 1 in January and has these same stomach aches/pains. We've run tests as well and all have come back normal, nor does his endo think it is related to his diabetes. I think it is. He's been 100% gluten & dairy free for 5 years, so we can rule out gluten as the cause here.

It's amazing to me that so many families like ours are having this exact same experience and the endocrinologists are so quick to dismiss it. I'm not sure how we can make our collective voice heard so some research can be done--maybe through the JDRF?

I think this thread is an important one and I'm glad I found it. I will share it with our endo at the very least. I'm also on a private Facebook group for autism + type 1. I will share it there as well to get some feedback.

Good luck to us all!