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Youngest person DX with Diabetes type 1?

Does anyone know how old the youngest person was who was diagnosed with Type 1 diabetes?

Also how old the youngest kid was who recieved an insulin pump?

Pumpgirl 03
37 Responses
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My daughter was diagnosed with type 1 diabetiies at 9 months old. That was in 1989. At that time they said she was the youngest. I’m not sure if she is still the youngest.
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I was 10 months old when I was diagnosed. I am currently on a pump and it’s it frustrating at times but so worth it.  I just got an email today that Medtronic insulin pump 670G ( which is the one I use ) is now FDA approved pediatric indicator( I am guessing that means suitable for kids, it pretty much works as your pancreas. It will alarm when starting to drop and blood sugar increases. Also has auto mode where it makes corrections so you won’t get as many alerts. Definitely talk with a representative and do homework on whatever pump you look into. Please let me know if you have any questions I would be able to answer if I am able to.
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i got it wen i was 18 month old and that was type 1 diabetes my name is laurren and now i'm 13years old
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I was diagnosed at the age of 7 months old. Now I am 23 and still going strong.
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20790785 tn?1507104631
I was diagnosed at 16 months of age. I was lucky enough to have a Aunt who was in her 4th year residency notice that I wasn't just being a fussy baby and couldn't seem to keep any water down. I was taken to the Children's hospital and diagnosed by one of the top endocrinologist in the world, I was diagnosed in 83 and since technology was not even thought of yet I had to use strips that would count to 30 and then would be have some type of estimate as to what your blood sugar was ranging. I remember growing up being told I would never be able to have children or be a real adventurous person. I am now 35 with two healthy girls and love to travel. I don't use a pump but thats because I found it to be kind of irritating.
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One of my relatives got type 1 diagnosed at the age of 10, not sure about insulin, but she was taking medicines that time.
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I was diagnosed back in March 1975 at 17 month's old with Juvenile Diabetes. My Grandmother was who found out that I was a diabetic, due to an oder that I was giving off, and plus she was an Type 1 also. The hospital that my parents kept taking me to, kept saying that I had a cold virus, and to let it take it's corse. So my Grandma called to see how I was doing, and my mom said that I was getting worse, and not waking up, or moving. So my Grandma came to our place, just as soon as she walked into our place. She asked my mom what she was making, because of a sweet smell, and my mom said nothing right now. My Grandma went over to me, picked me up, and put my mouth to her nose, and said he is a diabetic, and get him to Children's Hospital now.
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My son was 13 months old when he was diagnosed with type I diabetes and at 22 months old, the poor kid was diagnosed with epilepsy. It's not been easy for him all the time, they were both very hard to manage at times.He is 26 now and has an insulin pump and a Vagus Nerve Stimulation device which eliminates a lot of his seizures but not all. My only hope is there is someday a cure for these and all the other wretched diseases that plaque the world. God Blesd
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Avatar universal
Hey PumpGirl03! I am an RN, and I really think that no matter what age you are, being diagnosed withi diabetes and all of the news and protocols, (or things you have to do because you have it), it's scary, overwhelming, and at first you don't think you'll EVER remember all the details or what (all the steps) you have to do.
Though I've heard of younger; one little 18 month old boy, who was diagnosed at six months so had been doing the entire routine for a year, had a blast with it! He was so adorable! We would get his"poke" as he called it, out and ready for him, clean his finger with alcohol, and then he would "do the poke" himself...brave little guy and extraordinary parents made it into a game! He allowed us to collect the blood, and then we just gave him the cotton and he held it on until he didn't need it anymore. Such a tough little guy I offered him a bandaid and he would say, "um....no finkyou". SO CUTE! I don't remember exactly how old she was, but his mom also had diabetes
I, which probably made it easier for him...just a fact of life like brushing our teeth. Anyway, i it was amazing to me that this little toddler, (like a little baby to me), who wasn't even potty trained yet, was willing to poke his finger with a small needle. But wow! 10 days, and on a pump already...science and our physiology will never fail to amaze me! Bree, RN, BSN
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Avatar universal
Hi,

Just found this forum I live in Ureland so we use different terms for highs & lows and also different types of I sulin from what I can see on here. Our 5 year old son was diagnosed last Mat when he was 4. Our daily routine has changed so much since then and we are still having lots of highs and lows. We are hoping to get a pump this year as there us a waiting list here in Ireland fir pumps but fingers crossed we get one soon U have been told they are the way to go :-)
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My cousin is the youngest. She was diagnosed in 1964 when she was four days old. Her brother was 10 days old in 1970 when he was diagnosed.
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I was diagnosed at age 11 months in 1970, I am now 41 years old!
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I was just informed by my father that in Feb. 1983, when I was diagnosed at 10 months old, they were told that I was the youngest juvenile diagnosis in the United States (at the time) and the second youngest in the world. Now I am 30 and entering into the medical profession as a DIABETES EDUCATOR, and I can tell you that babies are diagnosed within the first month sometimes if there is a family history and bloodwork to match.
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I was diagnosed in 1982 at the age of 10 months. My younger sister was also diagnosed just after she turned 1. My parents knew exactly what was wrong with her because of her symptoms. Yet our older sister is now 34 and doesn't have diabetes. I am almost 30 and I am healthy. I have had a pump for 11 years and I love it. My teenage years were rough and I didn't take care of myself but now I am a nurse and I am fortunate to have good health. My advice is to choose good foods, exercise, and get in with a endocrinologist that you work well with. I have also recently been diagnosed with a hypothyroid and low vit D level and have to take meds for them. Thanks for sharing your stories they are all very interesting to hear about.
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Avatar universal
I also have wondered about the youngest diagnosed.  I was diagnosed at 9 months old in 1967 in Louisiana.  I have been on the pump for 12 years and haven't looked back-I am healthy and strong and consider myself lucky to have been diagnosed so young.  I never had to struggle with changing diet and life patterns; I only know this life.
My mom tells stories of glass shots, reusable needles and doing urine tests from a diaper.  The 1960's diabetic care was good but it is so great now.
I wish good health to all diabetics and that it is only a thing to manage.
Be well.
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1738375 tn?1310732935
I was 2 when i got diabetes and a year ago i meet twins that were born with it
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Avatar universal
My daughter is 16 months old and was just diagnosed ith type 1 diabetes. She showed symptoms for a little over a month before she was finally tested because there was always something to explain her symptoms away! Good news is she is adjusting beautifully as she has alays been on a healthy diet and tight schedule
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My daughter was born on 9/3/73 and went into a diabetic coma at 8 weeks old.  We took her to Children's Hospital Los Angeles where after putting her through many tests, including a spinal tap, they diagnosed her with type 1 diabetes.  The doctors told me at that time that she was the youngest diabetic in medical history.  She was written up in the medical journals at that time.  It was later determined that it was a result of a birth defect, her pancreas was half the size of a normal one.
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These are very interesting posts.  I am at the opposite end of the scale. Like Mary Tyler Moore, I was diagnosed at age 30. It was obviously Type 1 because I had diabetic ketoacidosis (DKA), and a glucose level of 858. I remember handing the clerk at the ER window my insurance card but nothing else for three days as I was going into a coma.  What maddens me is some of the medical profession does not know the difference between Type 1 and Type 2.  I had an endocrinologist who never listened, took away all the carbs and did not give me a sliding scale for insulin and I passed out in front of the fridge while trying to get a  glass of orange juice!  My dad had to call the paramedics. The doctor then told me I wasted $500 of my insurance deductible calling the paramedics. What a jerk.  I've had very good control since 1996 when I was diagnosed and have had no complications. Eyes and kidneys are perfect, as are feet.  But it's a constant burden and I can't even imagine having a child that young with it.  The youngest one I ever heard of was the son of Doug Melton, who is doing stem cell research at Harvard. His son was about 6 months old and he nearly died.  He's now doing very well. Both of Melton's kids have it.
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Avatar universal
I was diagnosed with diabetes when I was 9 months old also. I had been in a comma for 3 days and the doctors could not figure out what was wrong with me. They told my parents I had 24 hours left to live. My parents had a priest come in and read me my last rights. They were down to about 4 hours when a nurse came in to check my sugar. My mom asked what she was doing, and the nurse just happened to be in the wrong room. Luckely enough, she checked it and my sugar was at 1,542! Needless to say they gave me insulin and I turned out fine. At that time I was the youngest person to have diabetes in North Dakota. I have a 5 year old a 4 year old and pregnant with our third child. At this time none of our children have it.
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I was diagnosed with Diabetes when i was 16 months old
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email me i am 13 and i had diabetes since i was 17 months old it stinks because when i get sick i end up inthe hospital with DKA (diabetic keytonacidosis) my email is provenzano.***@****
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I have to edit my comment above.  The girl in Chicago was one month old, not one week old.
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I wonder how many of you who were diagnosed before the age of 1 have been checked for Neonatal Diabetes?  My son was diagnosed at the age of 4 months with Type 1 diabetes but we later found out he had Neonatal Diabetes caused by a genetic mutation of the KCNJ11 gene.  There are several genes that can cause this condition and many patients with this particular type of diabetes can now be treated with the pill glyburide instead of having to take insulin (although older patients may still have to take some insulin).  I think my daughter may be the youngest to start on glyburide as she took her first dose at 10 days old.  I know there is a little girl in Chicago that was diagnosed with diabetes at one week old and she was one of the first 5 patients in the U.S. to switch from insulin to the pills at the age of 6.  If you were diagnosed with Type 1 diabetes before the age of 1 year old, the AMA is now recommending that you be checked for the Monogenic type of diabetes.  Contact the University of Chicago or go to monogenicdiabetes.org for more information.
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