re 10 year old highs and lows

[hectic]

hi kevin ,my son does have a endocrindogist but we can only see him once every 3 months,inbetween we have to phone the childrens diabetes specialist nurse,i phoned 2day and discussed the ongoing problems again but have been told to lower his insulin level am from 23 to 20 to stop the hypos and wait a week to see if his levels get higher if they do (which they will)as been down this road before,i then have to phone back and tell them.they also said if this happens they dont know what they will do next.recently spoke to our local gp about this and she wrote the endocrindogist a stinking letter about them letting this go on for so long with the highs and lows and asked them to change his insulin to long acting with fast acting before meals .but as yet still waiting his next appointment is end of feb with endocrindogist.i hope he will change his insulin as my son really thinks he is doing it wrong but he sticks to his diet and he does get down about the constant change in levels.i cant blame him ,i would as well.i really believe it all comes down to sticking to their budgets....thanks again.

[KevinHarney]

Sounds like it is time for a new Dr.  What the one now is doing is not wrong they just dont seem to have the time to do it correctly and fast enough.  You can reassure your son that it is NOT him.  It is very hard to find a good Endo in my area but you have to keep looking and getting referrals etc until you find one that you like and has time for you.  Tell your GP that you are not happy with the current one and you want another referral.  They should have no problems filling that request.  First Dr. that I had was GREAT but she had no time for me so I had to switch.  Then I found a couple lousy ones and finally settled in on one that is pretty good.  Sometimes the problem is that Diabetes is not rocket science.  There is not one solution to the problem you have to be willing to think outside the box and find the solution that works for that particular patient.  Everyone reacts differently to different treatments.  Another alternative is to tell the Dr. that you are not happy with the speed of changes and control of the diabetes and see if he/she is willing to make an appointment and try to change things.  If not go elsewhere and get what you need.

[JDRF-VOL-RL]

Hi!  I think this post is in followup to other posts and comments made earlier, but I would just add one more thing.  There is an organization called Children With Diabetes which has an email group you can join which is made up of hundreds of parents of kids with diabetes just like you from all over North America, and there is enough experience in that group that they can answer any question you may have.  They've all dealt with the same issues you are facing, and having that support group is a huge resource.  The list of groups is here, the one I'm referring to is the second one:

http://www.childrenwithdiabetes.com/people/mailinglists.htm