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Avatar universal

Help needed please!

I need help. Long story short, I was not tested for type one or two diabetes before I was started on insulin. I went from Janumet 50/500 to adding Lantus 2 weeks later. When I hit 22 units, my fasting number went to 81 from a starting number of 324. My concern is that even with the fasting level in normal range, my two hour BG level still spikes to the high 200's. I have followed the recommended diet and watch my carb count very carefully. Can I still be tested to find out which type I have or does it even matter at this point?
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Avatar universal
I guess you'll just have to wait until you get the test results.  I'm sorry you're dealing with this difficulty.  Hopefully, you have a good support system to help you get through this adjustment phase and beyond.
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Avatar universal
I was not overweight, I've always been normal, bmi of 23. I started eating like crazy and still lost weight which was odd to me.
Helpful - 0
Avatar universal
I wish I could answer that question for you, but I can't.  You mentioned that you lost 20 pounds......Were you overweight?  It's possible you may have Type 2.  I'm sure you're anxious to know, but in the meantime keep following your doctor's orders with your meds and watch your diet and when you get the diagnosis, your treatment plan can be tailored to your situation.  Again, I do think you should be in the care of an endocrinologist who is the best provider to get your blood sugars under control.
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Avatar universal
I didn't get a c_pep test, I was showing signs of DKA(?) When I went in for an unrelated issue, told her I was thirsty and starving all the time, found out I'd lost 20 lbs in about 3 weeks and she immediately sent me to the lab. My A1C came back at 13.6 with an EA average of 344. She said at this latest appointment that she wanted to start me on both insulin right away, but could see I was too shocked to deal. I have now done the automating panel and am waiting for the results. So is this LADA or type 1? I know I'll find out in a couple weeks but I'd rather know now!
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Avatar universal
The doctor tests your insulin levels with a blood test; it can be tested the same time you have a blood test for your A1c, cholesterol, glucose, etc.  I'm glad you're now on insulin as it seems to be working for you.  Whenever you eat any type of carb, your glucose goes up because either your pancreas is not producing insulin...or it is in lower amounts.... which may mean you have Type 1.5 (LADA), or your pancreas is producing insulin but your body is resistant to its effects which would be Type 2.  People who get Type 1.5 tend to be leaner, not overweight, and they have a family history of Type 1 or 2 diabetes.  Sounds like your doctor is handling it well, but if you do have 1.5, I believe you should be under the care of an endocrinologist.  I'm not a medical professional, but I've done a lot of research on this as I'm lean and have had issues with carb sensitivity and an A1c in the pre-diabetes range.  I'm sure it's all very overwhelming for you, but with a good doctor he or she should guide you along and help you adapt to your situation.  Again, please post your results when you get them.  I wish you all the best.
Helpful - 0
Avatar universal
I don't have any other auto immune problems, I've been very healthy my whole life with the exception of high LDL, but I also have a high HDL so I was told it is hereditary. And with my BG levels I must clarify that it starts low and raises throughout the day, but not at the extreme it does if I eat even 12 carbs. That small amount will raise me 60 points at the 2 hour mark. It will drop after a while, but still stay higher than the number I started at. While on Lantus.
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Avatar universal
I don't have any other auto immune problems, I've been very healthy my whole life with the exception of high LDL, but I also have a high HDL so I was told it is hereditary. And with my BG levels I must clarify that it starts low and raises throughout the day, but not at the extreme it does if I eat even 12 carbs. That small amount will raise me 60 points at the 2 hour mark. It will drop after a while, but still stay higher than the number I started at. While on Lantus.
Helpful - 0
Avatar universal
My fasting level dropped from 299 to 81 with the introduction of a basal insulin ( Lantus 22 units) I'm not quite sure how I'm supposed to measure the insulin my body produces but I would assume not enough since I am also now on a fast actin insulin (novolog) as well.  I think I'm on information overload here. If I don't eat my blood sugar stays low but if I do it skyrockets back up to 200+. Is that the info you're looking for?
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Avatar universal
I need to clarify that I'm not talking about insulin dose, I'm talking about the amount of insulin that's being produced by your pancreas, so I'm referring to the insulin levels in your blood.  I hope I'm not confusing you.
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Avatar universal
Fasting insulin can give you an idea if you have autoimmune Types 1, 1.5 or Type 2.  With Autoimmune diabetes, your body is not producing enough....or any....insulin, so your levels would test very low.  With type 2, there usually is some insulin resistance, so your levels would be high because your body is resistant to its effects so your pancreas produces more.  Your fasting glucose would be high in all three types, but for different reasons as I just mentioned (pancreas not producing insulin vs. body resistant to insulin).   In any event, I'm glad you had the antibody test done.  Do you know if the doctor ordered a c-peptide test?  As with fasting insulin, this would be low if you have autoimmune diabetes and high or normal if you have Type 2.  Please post when you get the results.  Good luck to you!
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Avatar universal
Did not start invalid...started nuvalog silly auto correct!
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Avatar universal
Did you mean my insulin dose or my fasting glucose level? Sorry I'm still new to all of this. My doctor today told me she thinks it's  not type 2. She said I'm showing characteristics of 1 and 2, but is concerned that the symptoms went from zero to extreme in such a short period of time. The autoantibody panel has been taken and I should get the results in 2-4 weeks. I also started invalid today to supplement the Lantus.  I still have to keep taking the Janumet as well
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Avatar universal
I forgot to mention that your fasting insulin would be low with Type 1 or LADA.  If it's Type 2 and you are insulin resistant, your fasting insulin would be higher.  
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Avatar universal
You need to be tested as Type 1, Type 1.5 (Latent Autoimmune Diabetes in Adults) and Type 2 have different causes.  Type 1 & LADA are an autoimmune disease meaning antibodies are attacking your pancreas beta cells.  It's a matter of time that your body will no longer produce insulin if it hasn't stopped already.  Type 2 is NOT autoimmune; your body is still producing insulin but your body is resistant to it or it's not enough.  You need to see an endocrinologist.  If your doctor doesn't refer you, ask for your C-peptide level to be tested; with Type 2 it is normal or high; with Type 1 & LADA it is low.  Also, you can ask for a GAD antibody test.  If you don't have antibodies, it's Type 2.  These diseases are treated differently.  The meds for Type 2 will not work for Type 1; they may work initially for LADA, but you will eventually require insulin.  Do you have any other type of autoimmune disease like Hypothyroidism?  That would make you a higher risk for Type 1 or LADA.  PLEASE insist to your doctor that you want to be tested.  
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Avatar universal
They told me 45 carbs for meals and 2 snacks @ 15 carbs each. Everything is low fat and no sugar, whole grains. No pasta or rice. I try to keep them to complex carbs. How do I get my PCM to refer me to get the typing test? When I was first diagnosed her response was oh it's most likely type 2. I'm 5'7" and am not even close to being overweight. After talking to a "disease manager" I finally have an appointment with a dietician, but there's been no mention of an endocrinologist yet.
Helpful - 0
Avatar universal
Yes it matters Janumet is usless for a T1.

carbohydrates raise BG  ALL carbs raise BG.  if your BG is going to high your eating too many carbs *AND OR* you need a mealtime insulin (rapid acting) like novalog or  Apedra to counter act the carbs.
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