Aa
ERCP
I am a 32 year old female with a recurrent problem! I had my gallbladder removed in September. 10 days later, I was admitted into the hospital with severe pain that turned out to be acute pancreatitis from retained stones in the common bile duct. While hospitalized, I had an ERCP to remove the stones, and was told "the stones are gone." After going home, I continued to experience chronic pain in the upper right quadrant that was sometimes a mild ache, sometimes a sharp stabbing pain. I returned to the doctor for treatment in November, had another ERCP in mid-December, followed by another attack of acute pancreatitis that I was hospitalized again for 3 days. This time the doctor removed 5 stones from the cystic duct (he called them "hidden stones"). When I was released, the doctor said that any new stones that I form, or any that are still "hidden" should fall right out because I had a complete spincterotomy. In the three weeks since I had the last ERCP, I have continued to have pain, severe belching throughout the day, and the inability to eat much (I have lost 10 pounds). On New Year's eve I went to the ER with what I thought was a pancreatitis attack (it disapated after 15 minutes), and all the tests performed there were normal, including CT Scan, lipase and amylase, x-rays and urine tests.
I have either diarrhea or no bowel movements at all. I'm desperate for an answer, and the doctors seem clueless, or unavailable. I'm tempted to try natural remedies. Is there anyone out there that has been through a similar ordeal? I'm an alarmist and have concerns about having chronic pancreatitis, so am reluctant to have another ERCP unless absolutely necessary.
I have either diarrhea or no bowel movements at all. I'm desperate for an answer, and the doctors seem clueless, or unavailable. I'm tempted to try natural remedies. Is there anyone out there that has been through a similar ordeal? I'm an alarmist and have concerns about having chronic pancreatitis, so am reluctant to have another ERCP unless absolutely necessary.
Are you in Texas paty? I also have a famous OS that does only hips and knees and it is *&%^%$^&* to get into see him. I am on Plavix so he cannot do my knee for another 3 months. He told me to pick the anesthesia I want. I think I just want a local in the knee so I do not have to retch and be in a stupor for a day or two. He is only going in there to clean up a mess in the knee...as he put it,"clean up the mess in there". LOL
Yes, the pills are not like the injection. But, better than nothing. I wish I could bottle that stuff as people with our problems need "something" and Torodol seems to do the trick with our woes.
I was given a bottle of egg nog the week before Xmas. In it had whisky, rum and something else. I do not drink (not against it but never liked the taste). well, I took a small glass of this "nog" and it tasted so good. So, I took another small glass and the next night another one and so on and so forth. By, Xmas Eve, I was getting right sided mid pains. Then the ache went around to the front right (not screaming pains) but a dull moderate ache. Well, it is still with me. I kept thinking it is my kidney, then my lung and then the liver, and of course the bile duct. It had to be the Fat in the Nog and the liquor in it. Yes, this can go on for another month until it settles down. My Chest CT scan a month ago showed bile duct enlargement. This has appearred like this now for almost 5 years, to my knowledge. ERCP is brutal and I had one back 19 years ago and they found a 45 minute delayed emptying duct(whatever than meant) They did trigger the Shrincture of Oddi pain with a narcotic and I thought I would die right there. They gave me Demerol to counteract it. I had an MRCP a few years ago and this did not show the enlargement but all CT scans of abdomen and Chest will show this. Makes no sense why one test will show it and not another. I am too old now for any intervention unless they tell me it is life or death. Got to dwell on my knees and heart issues and thyroid. If it isn't one thing it is another. It sure is *%^&^%^&* to get old! LOL
Yes, the pills are not like the injection. But, better than nothing. I wish I could bottle that stuff as people with our problems need "something" and Torodol seems to do the trick with our woes.
I was given a bottle of egg nog the week before Xmas. In it had whisky, rum and something else. I do not drink (not against it but never liked the taste). well, I took a small glass of this "nog" and it tasted so good. So, I took another small glass and the next night another one and so on and so forth. By, Xmas Eve, I was getting right sided mid pains. Then the ache went around to the front right (not screaming pains) but a dull moderate ache. Well, it is still with me. I kept thinking it is my kidney, then my lung and then the liver, and of course the bile duct. It had to be the Fat in the Nog and the liquor in it. Yes, this can go on for another month until it settles down. My Chest CT scan a month ago showed bile duct enlargement. This has appearred like this now for almost 5 years, to my knowledge. ERCP is brutal and I had one back 19 years ago and they found a 45 minute delayed emptying duct(whatever than meant) They did trigger the Shrincture of Oddi pain with a narcotic and I thought I would die right there. They gave me Demerol to counteract it. I had an MRCP a few years ago and this did not show the enlargement but all CT scans of abdomen and Chest will show this. Makes no sense why one test will show it and not another. I am too old now for any intervention unless they tell me it is life or death. Got to dwell on my knees and heart issues and thyroid. If it isn't one thing it is another. It sure is *%^&^%^&* to get old! LOL
P.S.
Torodol IS compatible with blood thinners (at least for a short time), as I was on them in ther hospital when I was given the Torodol....
Torodol IS compatible with blood thinners (at least for a short time), as I was on them in ther hospital when I was given the Torodol....
I would not dive into surgery so quickly. I think you need to do some research first and then come to your own conclusion. I had really bad acid build up in tummy and it happened twice and I have had to see two surgeons. Both of them were looking at me with a quizative eye. Then very unsurely suggested surgery. They told me to do it immediately and do not even think about what was going to happen the day of the surgery. Well, I scheduled and they rolled me into the op room. I had a panic attack and screamed violently at both of them . One had a 12inch butcher knife in his hand and started to wave it around wickedly laughing at me!!! I was nude and totally in the bar ebuff when I quickly hustled out into the parking lot. I fell and scraped my knee. I had two guys on the side of the road running for me ( I think they planned to do something!!!) I was able to get into my car and had to deal with unbearable situation of having each person stare everytime I came to a stop light. There were 25 stop lights mind you...
Just think about this first...;0
Just think about this first...;0
I know surgery or any medical procedure can be hard on us as we cannot tolerate narcotics. (getting a tooth pulled on Tuesday and will Advil this)
My hubby just had a new hip with a great hip doctor and they had him on a Fentynal patch for the first few days. They sent him home with Vicodin and after one Vicodin, he could not tolerate it and he does not have Sphincture of Oddi. He got on Aleve and Advil and kinda toughed it out.
Now, I need knee surgery and I know i cannot have the "hard stuff"...
But, when I was in an ER room for a suspected pleurisy attack 2 years ago, they gave me a shot of Torodol. WOW! Within, 10 minutes, I was dancing and no Sphincture pain.
I tell everyone and write everywhere that I cannot take any type of narcotics or Opiods or any derivatives of these.
Back to the Torodol, for some reason doctors can only RX this med for 5 days and 5 days only, I was told this by several doctors.
This also comes in pill form and I did ask for these in pill form and was given 15 pills only. 5 days x 3 a day and that was it. NO REFILLS....
I am not sure if Torodol will be contraindicated with Lovenox or Heparin which we hippers and knee-ers nned for surgery to prevent blood clots but you may want to ask your doctor about Torodol.
I think I am toooooo old to even think about having anything done now about this Sprhinture problems. Knees, heart and hips are now in my "age group". LOL
My hubby just had a new hip with a great hip doctor and they had him on a Fentynal patch for the first few days. They sent him home with Vicodin and after one Vicodin, he could not tolerate it and he does not have Sphincture of Oddi. He got on Aleve and Advil and kinda toughed it out.
Now, I need knee surgery and I know i cannot have the "hard stuff"...
But, when I was in an ER room for a suspected pleurisy attack 2 years ago, they gave me a shot of Torodol. WOW! Within, 10 minutes, I was dancing and no Sphincture pain.
I tell everyone and write everywhere that I cannot take any type of narcotics or Opiods or any derivatives of these.
Back to the Torodol, for some reason doctors can only RX this med for 5 days and 5 days only, I was told this by several doctors.
This also comes in pill form and I did ask for these in pill form and was given 15 pills only. 5 days x 3 a day and that was it. NO REFILLS....
I am not sure if Torodol will be contraindicated with Lovenox or Heparin which we hippers and knee-ers nned for surgery to prevent blood clots but you may want to ask your doctor about Torodol.
I think I am toooooo old to even think about having anything done now about this Sprhinture problems. Knees, heart and hips are now in my "age group". LOL
We have something else in common...I was also given Torodol in the hospital after day 2 and they discontinued the "real drugs" and narcotic pump....IT WAS WONDERFUL!
It was suggested by my internist (not the famous orthopedic surgeon...DUH!)
However...my internist said that you could only give it by injection, or IV (I forget which)....it is available in pill form, but he said it was not nearly as effective. It's actually an anti-inflammatory, not a pain-killer, but I agree with you...it sure does the job and more Docs should know about it and use it.
I'm dealing with a flare-up of my Sphincter of Oddi condition right now...can't figure out what flared it up, but guess it's something we all just have to deal with. I KNOW that alcohol is off my list of things I can tolerate....I was never a heavy drinker, but love a martini now and then, and a glass of wine when out to dinner....think that's all over for me, as once the dull pain begins, it lasts days, or even weeks, and I can usually trace it back to eating something I shouldn't have...this time I suspect lots of cheese over the holidays...I had my gall bladder out 45 years ago and never had trouble eating or drinking anything for all those years until recently...
These "Golden Years" don't seem so golden sometimes...
Pat
It was suggested by my internist (not the famous orthopedic surgeon...DUH!)
However...my internist said that you could only give it by injection, or IV (I forget which)....it is available in pill form, but he said it was not nearly as effective. It's actually an anti-inflammatory, not a pain-killer, but I agree with you...it sure does the job and more Docs should know about it and use it.
I'm dealing with a flare-up of my Sphincter of Oddi condition right now...can't figure out what flared it up, but guess it's something we all just have to deal with. I KNOW that alcohol is off my list of things I can tolerate....I was never a heavy drinker, but love a martini now and then, and a glass of wine when out to dinner....think that's all over for me, as once the dull pain begins, it lasts days, or even weeks, and I can usually trace it back to eating something I shouldn't have...this time I suspect lots of cheese over the holidays...I had my gall bladder out 45 years ago and never had trouble eating or drinking anything for all those years until recently...
These "Golden Years" don't seem so golden sometimes...
Pat
It was very interesting to read that you are sensitive to narcotics and other pain relieving drugs...I have never spoken to anyone else with Sphincter of Oddi disfunction that has this reaction to narcotics, besides myself.
A word of caution...if you ever have to have surgery, be sure to tell your surgeon of this reaction.
I had a total hip replacement 3 years ago, and had more problems from the resulting pancreatitis (from pain drugs) than from the surgery.
Last year I had a knee replacement and had to go "cold turkey" on day 2 post-op because the pancreatitis was beginning again. The next 3 weeks of recovery(?) were awful!
I don't know what people like us are to do when we have surgery, if we are unable to take the narcotics.
Has anyone else experienced this, or does anyone have any suggestions???
A word of caution...if you ever have to have surgery, be sure to tell your surgeon of this reaction.
I had a total hip replacement 3 years ago, and had more problems from the resulting pancreatitis (from pain drugs) than from the surgery.
Last year I had a knee replacement and had to go "cold turkey" on day 2 post-op because the pancreatitis was beginning again. The next 3 weeks of recovery(?) were awful!
I don't know what people like us are to do when we have surgery, if we are unable to take the narcotics.
Has anyone else experienced this, or does anyone have any suggestions???
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