6 years ago I started having bad stomach upsets characterised by loose stools, nausea, lower abdominal pain & fatigue. The Dr couldn't find anything wrong so sent me home. I gradually became iller as the upsets continued over 3-6 months I ended up in bed with fatigue, weakness and malaise. I then saw a different Dr who suggested I might have Giardia. After flagl I felt better and started to recover only to have a reoccurance of symptoms 6 months then 12 months later. Each time flagyl fixed me. On the 4th reoccurance (sickness, loose stools, gasteorentirius, nausea, weakness, fatigue)I had an endescope and colonoscope where they found I have focal accute colitus of no known cause & also slush in my gall bladder. A course of antibiotics fixed me and repeat colonoscopy showed the infection had gone.
When I relapsed the next time they took a different approach and treated me as if I had an inflamatory condition. I felt somewhat better from anti inflamatories such as olsalazine but it was really antibiotics that made my stools normal again, stopped the nausea and gave me my energy back. I had various scans such as MRI, CT, Ultra sound, barium meal and everything was normal apart from again slush in the gall bladder on all occasions. In 2003 after 3 years of illness I finally got back into full time work.
As things progressed over the last 2 years I have generally got much better but I now expereince attacks every 2-3 months of nausea, fatigue, headachyness, weakness, and sometimes a bad stomach but not really anything severe. I do get lower right abdominal pain and I also go yellow (bilirubin 4 x normal) however this has been put have down to Gilberts. Whenever I have been ill in the last 2 years blood test results show (high bilirubin, high iron & iron saturation, a low lymprocyte count and a slightly elevated MPV). In between attacks blood is normal and I feel totally normal. When I have these attacks I often feel infected so am usually given antibiotics as Dr can find no explanation. After 1 day of antibitics I feel much better and am totally recovered after 3-4 days of a course. I have had everything from cipro - oxfloxacin - cephradine - flagyl - doxycycline. Sometimes one doesn't work so we revert to the next one. I have also been presecribed Mepacrine in the past once when various antibiotics failed.
The problem is I have seen the a Prof of immunology in London who said no hiv & there's no infection or anything wrong with my immune system. I have done 30 + stools tests over the years with all negative results. I have also seen gastenterologists who have never seen elevated esr or crps so say it can't be inflamatory and hepatologists say there is no liver problem or the hemacromatosis gene. A homeopath has suggested it is blasto cystis homonis or a recurrant parasitic infection.
I was just wondering if anyone had any thoughs? Also where is the best hospital for gasto in the US, Mayo clinic?
Male 28: drug, family, alchol history -ve