Dear Doctor,
I am currently in a severe acid reflux flare. I have had reflux for almost three years, which began during a pregnancy. My reflux is episodic; I can have months where I am symptom-free and then weeks or months where I am struggling with it. I am a hard case to treat. PPI's are not helping -- I have been on all of them, on double doses. Last year, had an endoscopy [showed mild esophagitis] and 24 ph test was negative [however, I had no reflux symptoms on the day of the test]. Manometry was normal. These studies were all one year ago. Differing doc opinions -- one says I have hard-to-treat reflux; two others say I probably have non-erosive reflux disease.
Six months ago, I had a test for gastropareisis -- normal. Ultrasound of upper abdomen -- gallbladder normal. No HIDA scan done.
These flares are very hard for me to deal with. The burning is severe. I often have shortness of breath and sharp pain in my upper back between shoulder blades, more on right side than left [feels like my lungs]. I believe the acid is getting into my lungs. Can't imagine that I have non-erosive reflux if it is affecting my lungs like this. I also cough up mucous almost every day. Burning in esophagus and throat. I have eliminated all items from my diet that are bad for gerd, sleep elevated, and don't eat anything for hours before I go to bed, yet these symptoms persist. I've also tried DGL, Gastrex, Gaviscon, Zantac, and every other product you can imagine for heartburn. Currently I'm on Protonix and other antacids. I'm noticing a pattern that the reflux is brought on after I take antibiotics, and/or after I have a respiratory infection like bronchitis.
The only other thing happening is that I'm having some green mucous in my stool. Is there any way that gallbladder can be involved here? Can gallbladder problems worsen reflux symptoms? Is a HIDA scan a good idea?
I'm thinking more and more about talking to a surgeon about the Nissen procedure. These flares tend to last a long while; I have little to no relief from meds, and my quality of life is not good at those times. I'm also thinking that I should have another 24 hour ph study, since it's been a year and I felt no refluxing on the day of the last study.
Sorry for such a long post, but this is a rather complicated and confusing situation. I'm at a loss. Your thoughts are really appreciated here.
Sincerely,
Kate