Aa
A
A
A
Close
Digestive Disorders / Gastroenterology Forum
This expert forum is not accepting new questions. Please post your question in one of our medical support communities.
Avatar universal

biopsies of intestines show if Amyloidosis were present

Have just completed a full GI workup including colonscopy with mulptiple biopsies /upper endoscopy with biopsies all negative. Cat Scan blood work including ANA CRP workup for ulcerative colitis with one part of it having an "equivical range " Ultrasound of Gallbladder Liver etc. Still having GI symptons cramping bloating constipation alternating with occasional diarrhea.Feeling full early apetite less. Began workup for that and also Fatigue. Could This be Amyliod which isnt seen on the regular biopsies done during the endoscopies, What should I do to rule this out. Thank-you
2 Responses
242516 tn?1368227505
MEDICAL PROFESSIONAL
I agree with Lori707, amyloid is quite uncommon and there are specialists that focus just on treating amyloid patients who you could consider getting a second opinion with.

Dr.Belinda Ng is a cardiologist trained in Amyloidosis. Dr. Ng is the first physician formally trained in Amyloidosis and is a cardiologist trained at Northwestern Memorial Hospital in Chicago, IL. She has performed significant clinical research on amyloidosis at Boston University Medical Center  and has seen hundreds of amyloid patients.  She's currently practicing in LA, CA.  She could advise on the right tests to consider this diagnosis.

Enoch Choi, MD
Avatar universal
I myself just had biopsies of my colon and esophogus for amyloid deposits which came out negative. But it's like looking for a needle in a haystack.
Wondering why you're asking about amyloidosis since it's so rare. Also, did they use congo red stain on the tissues taken? That's very important. Your tissue samples have to stay at the pathology lab for 2 yrs. You might want to consider having them sent to the Mayo Clinic for review and they can return the samples to you. I think it costs $45. My mother had that done. The Mayo Clinic is one of the main places that specialize in amyloidosis as does the Amyloid Boston Clinic in Mass.

There are many reasons for your symtoms that you're explaining.
Waiting for your reply.
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Learn which OTC medications can help relieve your digestive troubles.
Is a gluten-free diet right for you?
Discover common causes of and remedies for heartburn.
This common yet mysterious bowel condition plagues millions of Americans
Don't get burned again. Banish nighttime heartburn with these quick tips
Get answers to your top questions about this pervasive digestive problem