go there ask
Thanks everyone for your suggestions and help. Yes, he still has his feeding tube but after his last round of chemo, he had a bad infection surrounding the tube that put him back in the hospital for a week. The doctors are considering taking out the tube if he has another bad experience with an infection but this is worrying him since he won't get the same amount of calories without the tube...especially since eating is giving him so much trouble. I'll keep you all updated and pass along the information to him. Thanks everyone!
I had a total gastrectomy 2 years ago. Tell your friend to hang in there and take just 1 day at a time right now. His system is going through a lot. I know nothing about his disease but would be willing to offer any support I can. As far as the dumping syndrome, I know how uncomfortable he is. It does get more tolerable in time. I'm assuming he still has his feeding tube at this point! Sometimes the formula is even too rich!! Besides not eating any sugar I sometimes sipped on warm peppermint water. That seemed to help a little. If nothing else, just to smell the peppermint. Hope this will help a little.
You might want to try the following WEB sites and see if they offer anti-dumping diets:
From Jackson Gastroenterology office in Pennsylvania:
I also recommend that you access the Association of Cancer Online Resources ("ACOR") site listed below for additional information, including stomach cancer internet support groups.:
Hello, I don't know much about this disease/procedure BUT...my daughter has a feeding tube and at one time they had it directly in her small intestines...a jejunostomy tube.It is about as big as i.v. tubing and some people need continuos feeding some can be fed at certain times. My daughter is on Osmolyte HN. Those nutrionists or dieticians are supposed to know about calories and things like that but not so much as how you're fed. I have had the same problem. You would or should consult a GI Dr. they are the experts in this area. Don't worry it seems overwhelming but it really isn't. I wish your friend a complete recovery and please keep us updated on his condition. It will be hard at first but it gets better as healing takes place. They may even be able to make an artificial stomach out of his own muscle tissue...you'd be surprised what they can do to help people..it's just finding the right Dr. Anyway Good Luck! I hope I was of some sort of help!