I've been on Florinef for about a month now and haven't really felt any different. I've actually lost about 10 pounds since I started it but I also started eating less because my nausea got worse (because I had to go off one of my medications) at the same time; my story isn't really accurate of what happens on Florinef, sorry. I don't feel any more bloated though. A good way to think about it is that you are not really gaining weight, you are just holding onto more water. Once you stop the Florinef you should drop back down to the same weight you would be without the Florinef.
I think I only carry an extra 5-10 lbs. with the florinef. Don't get me wrong, I'd rather not have the extra weight, but it's nothing compared to what I've gained from medicines that actually caused weight gain from fat. As patient915 pointed out, it's water retention. So I think it's safe to say there's definitely an upper limit on how much you're going to gain on it (unless you can somehow retain a LOT of fluid ... LOL), vs. medications like seizure meds that I've been on that have caused as much as 50 lbs. of weight gain for me. (I don't even want to talk about how long it took to get that off. Ugh.)
husband on florinef for over a year, not a pound gained!!
Thank you very much everyone. I'm still kinda scared of it...too many warnings besides the weight gain. It warns against using it if you have any immune challenges and if you are being treated with a mental disorder and I'm mental, lol! Seriously, I can't risk getting more depressed or anxious and I get sick at the drop of a hat already. This will have to be a last resort for me.
My doc said this was different than other steroids when I expressed concern but it is listed as a corticosteroid so I'm starting to wonder a little about him.