I am new to this so I am not sure I chose the proper topic because my symptoms span beyond the syncope. I posted in another forum and based on my post someone suggested I post here. I have many things going on and am feeling very frustrated that I have no clear diagnosis so I do not know what to do about it. I am 26 years old. I am a full-time student and work part-time. Here is my previous post:
I am not really sure where to turn anymore. Sorry, this will probably be a long one. I just want to know what is happening to me. I have been seeing doctors on and off for four years. I have been passing out since I was 2 or 3 years old. I estimate that I have passed out over 200 times in my life. When I was a child I had low blood sugar so it was attributed to that. In 2006 I passed out in public and was hospitalized. I passed out while on the monitors and learned that my heart stops when I pass out. They saw up to an 8-second pause. It starts back up on its own. I have been told that it looks like I'm having a seizure when I pass out but a doctor told me that it's actually not a seizure, it's my nervous system shutting down. I was diagnosed with vasovagal (neurocardiogenic) syncope, although I am not sure if someone's heart stopping is part of vasovagal syncope. I wonder about what may be happening to my brain and body for it to shut down so often. My main daily issues are fatigue/exhaustion and nausea.
I am almost always tired or exhausted and nauseous. I have also started having more difficulty swallowing food and getting a good enough breath without making an effort. I learned from an echocardiogram recently that there is fluid building around my heart (pericardial effusion) but I don't know what it is or why it's happening. I was also told I have a decreased systolic function. Two and a half years ago it was at 65% and now it is at 50%. I am told that is at the lower end of normal but not appropriate for someone my age. I'll be seeing the heart rhythm specialist soon.
I have seen two endocrinologists but moved and did not get to continue seeing the second one. One thought I have PCOS, one did not. I have very high DHEA. I am not sure if those things are relevant. I was referred to a rheumatologist and found out that I do not have a rheumatoid disorder. I have terrible GERD, which I am told may be why I am having trouble swallowing and breathing and have a regularly occurring cough and nausea. I also found out from a barium swallow that when I swallow any texture of food or water that it does not continue down my esophagus to my stomach. Some of it lags behind and stays in my esophagus. They said that is probably why I feel full almost right after I begin eating.
I have begun having problems with my circulation. I can't stand in one position for long without getting queasy. I have to keep moving or sit. I have a manual car. Often during or after driving now my toes start getting tingly and going numb, I think from pushing on the clutch with my foot. That never used to happen. I'm also getting tingly and numb feet and lower legs (up through my calf) sometimes, dependent on the way that I sit.
I've also been having difficulty with my balance. If I look up or to the side too quickly I begin to fall over, not always but I am noticing it on a regular basis. I sometimes have difficulty with my vision, things are more blurry and out of focus, usually coinciding with slowed response time. It's hard for me to think of words sometimes or remember what I was just saying or react. When I feel like this I don't drive, just to be safe.
My mom has had her gal bladder removed and has chronic pancreatitis or something like it right now. Heart problems run in her side of the family but I have been told that the structure of my heart is normal. I have the fluid around my heart, the decreased systolic function, and sinus arrhythmias, sometimes bradycardia, sometimes tachycardia, sometimes off-beat. They put a heart holter on me for 24 hours recently and the results said that I had tachycardia for about 45% of the 22-hour period. I am not exactly sure what all information to include here. Most of my lab work comes back normal. I have been tested and found negative for lupus, diabetes, hepatitis, HIV, and pregnancy. If anyone has any thoughts on this I would really love to hear them. I have researched everything I can think of to research. I have gone to many different doctors with the answer of yes, something is wrong but without any definitive help. I just want to know what's happening so I can do what's possible to help myself lead a healthy and, hopefully, long life.
Thank you for taking the time to read my post.