I was just in the hospital for two weeks while the drs performed every test possible to explain my hyperadenergic state. Finally they put me on Clonidine 0.1 mg 3 times a day and carvadilol at 12.5 mg 2 times a day. They were so puzzled by my positional tachycardia(fast heart rate) of 120-150 and my blood pressure getting as high at 222/138. All I was doing is getting up to walk around. Finally with this combination of meds everything is under control for now. I feel dizzy and tired from the meds but anything is better then being on a constant adrenaline rush!
While not officially diagnosed with a certain form of P.O.T.S., I believe I have the hyperadrenergic form due to various abnormal catecholamine (or related) lab readings at various times.
I have tried prescribed blood pressure medications, starting with lopressor I think it was, then verapamil- didn't really notice help for it. A doctor had me switch to labetalol for a time prior to a surgery, just in case I had a pheochromocytoma (it wound up being ruled out).
The most recent cardiologist I went to advised not taking any blood pressure medication because he felt it would just make me feel worse. Later, I tried verapamil anyway, but when I got up to the 180 mg I used to be on before, it knocked my blood pressure quite low and I wound up with a migraine headache.
Hi,
Just wondering if you had any luck with medications. I am 40 and a marathon runner with the exact same issues. About 4 months go my HR increased like crazy during a run. I am putting off the beta blocker. Nice to compare notes with someone similar.
JK - Tampa