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Dysautonomia (Autonomic Dysfunction) Community
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Avatar universal

Do you get blackouts frequently?

Hello all!
I am 14 years old and was diagnosed with POTS almost a year ago, since then I’ve been on many medications and treatments which has not helped any of the problems. I’ve been on Fludrocortisone, Midodrin, Propanolol, nadolol, and some anti-depressant that is meant to cure headaches and help with my mental health during this hard time. Since my diagnosis I’ve been in the hospital 5 times, one being a 4 day admission. I’ve also suffered from, nausea, headaches, Severe and constant chest pain, low blood pressure, and high heart rate. Usually my heart rate is around 110 while laying down and will rise to190 while walking around. Things have gotten really bad. I’ve been out of school for almost 4 weeks now. My doctor has no clue what to do because none of the medicines have made any difference, I drink 100 ozs of water a day, I eat healthy, I have my salt, nothing is changing! I go to a school for the arts and my major is dance, so I haven’t been able to dance for almost a year as well. Life has been very troubling. My point is, my newest symptom are these blackouts, they happen 30+ times a day, and it lasts a few seconds. The first time it happened I was at school and fell back and hit my head really hard on my locker. Basically I lose consciousness for a few seconds, I’ve passed out before but this isn’t the same. My mom is a nurse and thought it could be Absense Seizures so we got an EEG but it came back normal. Could it be from the lack of oxygen to my brain or blood circulation?
I appreciate your help, life has been so hard and no one seems to understand what I’m going through.
2 Responses
Avatar universal
I used to black out several times a day.  That was 15 years ago,  The blackouts were caused by my blood pressure dropping to around 75/50.  Since I started taking Paxil, I seldom have blackouts.   Paxil is the only drug I know that works on the autonomous nervous system, preventing major excursions.
Avatar universal
I was diagnosed by Vanderbilt University Medical Center after being tested for a week.  At that time, they told me I had a 10% chance of surviving 10 tears. I would black out around once a week.   I was treated by a cardiologist at Brigham & Women Hospital by a cardiologist on the staff of Harvard Medical School.  He ordered me to undergo further testing.  He focused on my labile blood pressure.  He suggested that I get an ambulatory blood pressure unit, and prescribed several medicines, some of which control blood pressure.  He also advised me to keep Gatorade on hand.   We discovered that my blackouts were all associated with low blood pressure, for which I drank Gatorade.  Usually I would feel better within 15 minutes.  The Gatorade raises by BP by at least 10 points.  
To control my bloodpressure from going too high, I take amlodipine in the mornings, and lisinopril and metoprol going to bed.  I try to keep my BP between 140 and 120 systolic, and between 70 and 80 diastolic.  I am able to maintain these pressures at least 90% of the time.  I do have excersions both above and below this range, and use Gatorade or extra amlodipine to bring it back.  I am a Ph.D. physicist and feel I understand my dysautonomia & how to control it.
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