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Dysautonomia (Autonomic Dysfunction) Community
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Extreme sleepiness with pots?

I've been dealing with a form of dysautonomia since 2006, with symptoms that are ringing in the ears, Raynaud's, insomnia, restless leg syndrome, sleep apnea, a sensation of choking at times,but most troubling a sensation of being drunk/ dizzy...I have had high blood pressure in the past which resolved on its own. Over the past couple years I developed heart palpitations, fluttering,flip flopping etc...the past 8 months or so.. severe shortness of breath and near fainting, severe overwhelming sleepiness that is progressively getting worse, and extreme fatigue regardless of how much I sleep..this isn't normal sleepiness.
I am scheduled for a sleep study but truly feel that this isn't a sleep thing but an autonomic system thing...
Early on I was diagnosed with primary paradoxical syndrome, but was negative at a later date...I take Midodrine, (rencently started) and gabapentin, baclofen, ropinirole which I have been on these 3 for years
What is causing this is extreme sleepiness?? I cannot function...any meds or test?? I'm open to suggestions to help me function...I'm EXISTING only in my bed
1 Responses
20748650 tn?1521035811
Holter, stress test, tilt table. In that order.
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