SSD and POTS

[JCappiello]

I am only 26 with POTS and it is sooo very debilitating as you all know.. I was wondering if there was anyone around my age who has had to go on SSD due to POTS?

[AmberCCC]

I was older than you, but still considered young by SS. I got approved, but letter said since I was under the age of 43, my case would be re reviewed in three years.

It's imperative you not just list your symptoms, but what they cause you not to be able to do. I felt so much better mentally when I was approved. Now I can focus on treatments that allow me to live life again, and hopefully return to work.

Good luck, don't give up.

[LivingInHope]

Hang in there!  

If you are a Christian, look to the Lord, Who holds your hand and directs your steps.

[JCappiello]

aHh well got the EP on Tuesday - so I will see what he says... I just feel so lost right now

[LivingInHope]

I'd say with doctors on your side, you should try for it.  You might ask the doctors if they would do letters for you too, stating why they feel your medical state of health is disabling.  I am not on SSDI for my P.O.T.S. or I.S.T., but how I got on was I had a couple of disabling issues where I went from state disability to SSDI when that ran out.

[JCappiello]

That was helpful, but the posts were pretty old so if anyone has any current information/experience about POTS and SSD that would be extremely helpful.. I am so confused as whether or not I should file .. I am 26 have been suffering for over a year with Chiari and POTS and have missed 5 months of work (2 months earlier) (3 months currently).  Any advice, suggestions, experience, or thoughts would be sooo helpful.

[JCappiello]

Thank you =)

[LivingInHope]

Please take a look at this thread here:
http://www.medhelp.org/posts/Dysautonomia-Autonomic-Dysfunction/Social-Security--Medicare--Medicaid--etc/show/1091637