extreme bp change

[beema36]

As some.of u know I.have NCS and ms. I am on 4 bp Meds for bp which includes a betablocker for the tachycardia.
Last night I had weird experience. I actually had a good day. Was able to.do some.stuff around house that I haven't for a long time. My bp has been running in range of 106/60 most days as it was yesterday.astounded night b4 bed I was sitting relaxing and ears started ringing and felt full and I started ti shake. I took by it was 182/85 heartrate was 51 which isn't abnormal for me. Within an hr it went to 140/80. This a.m. its around 150/80 but I do run a little higher in a.m. I have had this happen a couple other times. Has anyone else had this experience?
Beema

[beema36]

Marie-I hope your SOB is better soon. That makes doing just about anything more difficult.
I have had several nerve conduction studies done. Each time they get worse especially in my legs. I believe that is one reason my neurologist feels I will be in wheelchair soon.
Ur lucky your drs like u to be a well informed pt. My ep is that way and my pcp is open to my suggestions at times but my neurologist has a big ego that gets in the way. After I was diagnosed with AD by my ep my neurologist told me he already knew that I had it but didn't feel it was necessary to tell me because in his words There's nothing much can be done for it. I informed him I believe he's wrong and am hoping he will do more research into this condition. In the meantime I will keep.reading and researching as best i can. The bp spikes just drive me crazy as there seems to be no definitive reason for them that I can see.
I don't know the answer to your Mayor question but would like to know that too.
Tonya-where's the link u promised?:)

[mtgardner]

The first doctor I was sent to was a nephrologist too.  Plus on this trip to town this week  I saw three doctors and two of them said it is time for Mayo.  They really want more answers to work with.  It is all so perplexing.

Beema 36,I meant my BP is higher in the morning but that morning the high was very low.  It got a lot lower as the day progressed.  I didn't phrase that one right the first time.

Everyone keeps testing here but of course it is limited what can be tested.  I am having a swallow test next week.  Next month I will have a nerve conduction test in my feet and legs due to some changes.  I am sure this all sounds familiar to many of you.  Tonyad I feel the same way about having had every test available.

I keep hearing from my doctors here that they aren't sure what to do with me.  Beema 36, I tend to be very analytical too and  I think we are because the jobs we had previously required such.  My nephrologist has expressed he is happy I am that way as it is helpful to have a patient who is involved and  active in their own care.  I like to understand the physiology of everything. That is what is throwing me about these BP spikes.  They don't make sense to me as yet.

Beema 36,  I correspond with a woman away from this forum with my same dx and she has these spikes too.  She states she can stand in one place breathing quietly and have them range all over the place.

I appreciate the fact on this forum everyone recognizes we do have things in common even tho some have MS involvement and some don't and some have tachyness and some don't.  I don't feel so much like the odd woman out here.  Everyone just contributes what they have experienced and know we all have things in common.  (Kind of like one big family :)

I am hoping my SOB settles down with the lowering of the thyroid med and the adding one BP med.  Yesterday I wanted to paint a little area outside and I had to have my husband carry the bucket of paint as I couldn't do that without loosing my breath.  It is so sudden and so perplexing.

I wanted to ask a general question here.  Does anyone know if you go to get tested at a place like Mayo or Cleveland, do you fly out once for a conference and then fly out again for  testing or do they do that all at once?  Marie

[tonyad]

   I have a GREAT link to send out.....Ok, just lost it :0    I'll post it in A FEW....Lol  
I had it now I have to go back and copy and paste it.....No, you are not being to Analytical at all...It is what it is..We have what we have!

~Tonya

[beema36]

Tonya- I think it right. My ms is really raising its ugly head today so maybe it affected the bps. My neurologist tells me I am too analytical so maybe he's telling me to give up searching for answers. I just baby seem to do that though:(

[tonyad]

  Yes for me too as far as the Neph doc.  I think I have seen and been tested for just about everything under the sun and seen specialist I did not know even existed..Lol

   I think for the case w/ me and Beema is that the MS is the begining Culprit and the AD is the extension of it which makes it a bit...well actually really hard to treat because of the CNS being under attack.

~Tonya

[beema36]

Heiferly- in answer to your yes a nephrologist is one of the first drs my pcp sent me to. I passed all his tests. Even the mri on renal.arteries even though I had bad reaction to the dye and my fingernails turned black. I actually had a seizure in the tube and when the tech Yanked me out her first words were I hope u know u ruined the test.lol Anyway I.jade tm have it done over at another facility and it also was ok.

Marie-u mentioned your bps.r usually low in the a.m. that's when I find mine to be the highest and.then by 10 a.m. they go very low. This disease is so strange.
Beema