Sorry about the length, its complicated story....Im looking for any info or comments on what I am experiencing.... My left shoulder and arm started having strange pains and feeling abnormal, a day later my left node in my elbow started swelling and also behind my left knee. I experienced extreme numbness below my left knee down to my foot, with tingling and odd sensations in my left foot and left hand as well, to the point I limped when I walked. The region where it felt like the nodes were swollen was very tight feeling on the skin and extremely itchy. The leg and arm were not painfull, just a very odd feeling. I started having headaches and severe migraines everyday with vomiting, with ringing in both ears, muffled sounds and thumping in my left ear, and a few days later I felt tightness and pressure on left side of my neck. I have been extremely tired and dizzy off and on. Sinuses infections almost every week since January, very pale skin, and easy bruising.
I went to my PCP who sent me to an infection specialist two days later. I went to him and he called my PCP to have me admitted to the hospital to run "testing". I spent 6 days of random testing starting on May 27. I had x-rays of chest, left arm. MRI of head and neck, ultrasound on vein on leg (to rule out blood clot), spinal tap to rule out menigitis, EKG, and tons of blood work -they used every single vein in my arms and hands, wich all collapsed and I was bruising all over for 3 weeks straight. My blood work just had elevated Sed Rate, elevated WBC of 13000, too much potassium. Im not sure about everything else, because the doctors really didnt discuss much with me. I saw a nuerologist who didnt think it was a neuro problem besides the migraines. The MRI showed bad sinusitis, mastioditis, and cerival lymphadenopahty with 2 nodes at least 2 cm, so they had me see an ENT dr.
June 9, ENT dr had me do audio testing, which came out fine. He did the scope down my nose and throat and said I had bad adenoid tissue build up, wich is rare for a 25 yr old since they are suppose to shrink when your a child still. He said he needs to remove them with surgery and will check for tumors, ect. He sent me to do a CT scan of head and neck to recheck lymph node sizes in my neck, ect. He put me on two weeks antibiotics, nasonex, and musanex. I went back on June 23. He reviewed results, adenoids still need to come out, acute sinusitis still showing on CT scan, and lymph nodes are still enlarged. He felt around on my neck, said they still feel about 1.5-2 cm. He put me on two more weeks of antibiotic (a total of 5 weeks) and wants to see my on July 23 in which He will reaccess again and if they are still enlarged (which he thinks they probably will be) he is going to do double surgery, open biopsy on my neck lymph node and adenoid removal. They arnt sure if this is what was causing all the other left side of body symptoms.
My questions is...has any one had anything like this???? Couldnt these things be signs of something else? What can I expect with the surgeries????? I am worried!