I am with you. blk133, I sent you an email. I have the same thing. If anyone reads this and can help me and blk133, so be it. Where is HOUSE when you need him?
Sorry Ignore last post here is the oneI have seen three ENT's. I have had MRI contrast-negative, CT contrast-negative, and three laryngoscopies-all
negative. I will be doing ok for a few days (small amount of clicking and no pains) then I will have days where I
have the clicking, occipital headache on the affected side, pain deep in the neck where the clicking is (in the
triangle of the neck region at the level of Adams apple and below jaw), twinges of pain to my ear, jaw, and
sometimes teeth. This is all on the same side that is clicking, the right side. I have had no trauma to the neck, no
tonsils removed or surgeries. You mean no one in the medical field knows what is going on? This is crazy. The
third ENT I saw is a professor at a medical school. I am really frustrated and at a loss.
I have the same problem and will see a specialist next week.
I didn't have any surgery in the area but I think I had an infection in the throat which caused high fever last year. It is all fine until recently I noticed the clicking when swallowing.
I have it now too. In addition, when I turn my head to the left or nod up and down a click occurs in the middle of my shoulders and the top of my neck near my head.
Going to an ENT.
I read that this unusual symptom was treated successfully at UCLA by a team of surgeons who took it on. They cured every person! They trimmed down bone fragments where it had been shattered during one surgery and thryoid muscle was trimmed for another. They had to isolate the clicking sound before performing the surgury. What lucky folks to have found a cure!
Good luck! Keep us (clickers) posted
An excellent ENT believes it's STRESS related similar to globulus histericus or some such thing. Interestingly, after being reassured it went away for the rest of the day.
Did the test down the nose, which must be their gold standard test for ENT docs. He is excellent and has an excellent bedside manner. He really listened and has the gift of persuasion as well. I'm hopeful that it is stress.
Dinner time was frustrating as heck though so I'm not so sure. He said see him in two months as a follow up to the syndrome but he's so popular I can't get in until January 09. Maybe I'll be cured. Either way, he wants to see me. "Clicky Throat Saga" to be continued...