So they ruled out cystic fibrosis (which can have thick sticky mucus, cough, and repeated sinus infections as symptoms and sometimes people don't experience symptoms until adulthood, according to Mayo Clinic- see private message)?
You've been to 4 ENTs, but are you sure they tested for everything with your trip to an allergist? I went to one in TN who had some training at Johns Hopkins who did testing, where they come up with treatment like an individual fingerprint to your specific allergies. But I'm sure there are many things (because I saw the list) that weren't tested for, though there were plenty that were. He spoke of how much mucus can be created by allergies and it can cause acid reflux type symptoms even with all the mucous. And did they do any auto-immune testing?
LPRD, laryngo-pharyngeal reflux disease can affect your throat, making you hoarse, you can have post-nasal drip and LPRD can cause a cough. Treatment for it is generally the same as GERD. There are voice therapists who deal with voice issues with LPRD. (See private message for more info)
Also, there are some speaking programs that can be used as applications on the i-phone. I have severe TMJ dysfunction, and at times am using the very inexpensive Speak It program with an i pod touch and wireless keyboard and mini speaker.
Additionally, you might consider a very good air purifier, possibly one with a hepa filter, to see if you get any improvement.
Thank you for the reply. The doctors did say it reminded them of CF but they also did not doing any testing, that I know of, to rule it out saying something to the effect it is a baby disease and didn't apply since I was 65. I will ask for the sweat test on the 18th on January, which is my next ENT appointment. The ENT sent me to the lung dr and they have done a cat scan and some lung capacity measuring with and withour buterol. I have an appointment on the 19th to discuss those results. The ENT also said they were leaning to some immume disorder and that will be their next approach if the pulmanary specialist don't come up with anything. Thanks again
Well, medicine is constantly in state of flux as to what they believe to be true, and since that website I found says it can come out in adulthood, who knows, maybe it can wait to come out much longer than they think? They should check it out and I'm glad you are planning to pursue it with that sweat test! They should definitely be looking at the immune system like the ENT is leaning toward.... leave no possible stone unturned!
And you're welcome for my reply!
Any luck with diagnosing this? If so, what's the treatment?
It sounds very similar to what I have.