Meniere's Disease - Open forum, what worked for you?

[molldoll26]

My mother was diagnosed with Meniere's disease about one year ago.  Her symptoms are primarily those associated with loss of hearing.  Ironically she was diagnosed and started experiencing the problems/symptoms shortly after having a crown put on one of her molars on the side with the Meniere's.  Has anyone heard of dental work making or creating Meniere's?  Do you think that it is possible it really isn't Meniere's and just something that happened with the dental work?  She has seen two different specialists and both just basically told her to avoid salt and caffenine.  Neither of these things have helped.  Any suggestions?  What has worked for you?  Thanks so much.

[michiann]

I have found the CURE for Meniere's Disease because #1: my dear niece (her name is Dana who is my relative) had the problem and she is now cured; #2: I found the cure through an understanding of salt dynamics because of my research into geology. The cure involves just drinking extra glasses of water from the time you first eat any salty food and for the next 2 to 4 hours. This is because water DILUTES the dissolved concentrated salt solution in your body as it travels up into your inner ear system (called the endolymph fluid). Without the consumption of extra water, then the endolymph fluid expands in your inner ear to create the dizziness & imbalance which is called Meniere's Disease. And DO NOT take a water pill because it will not help Meniere's Disease since the water pill does not "kick in" the water needed to dilute the salt in your inner ear. Also, you can eat the saltiest food on earth BUT you have to drink the extra water in PROPORTION to the amount of salt-amount consumed in your meal or snack.Thus, the rule of thumb is: you can always "over-drink the excess water" but you can "never under-drink the extra water".

In closing, I'm proud to say that I have cured my poor niece (my relative) of this disabling,biomedical malfunction, and I am sure my advice will cure you. I just want to add that the reason the doctors have not found a cure yet is because they don't have a knowledge of salt dynamics from geological reseearch, but I DO. Hence, everybody should spread this same good newssssss, so that anybody with Meniere's Disease can learn how to defeat Meniere's Disease. Sincerely, Michael I.

[RubenMV]

I had Meniere's diagnosed two years ago, no fever, no infection, etc.  After reading this it does actually correlate to having 3 half crowns placed on my molars.  It took a while for the dizzy spells to come up.

A few months after being diagnosed i took my family on a camping trip.  Surely, i got a dizzy spell and ended up falling on a Yucca Tree (not pleasant at all).  I found a local doctor which gave me 2wks of antibioatic treatment since i had many punctures on my skin and some leaves had to be surgically removed.  The dose was: 1000mg three times a day of amoxicilin.  

On the 2nd day of taking the amoxicylin, the fullness of the ears back of my head was gone.  It was very relieving.  I guess i had an inner ear infection all this time but didn't manifest in any bloodwork or fever.  

[claudiasan]

Anchorage dentist suggest you the very good solutions for all these problems

[NYDingo]

Ironic that mention was made of dental work preceding Meniere's symptoms, as I had a similar experience.  I had an unusually long dental session, and it coincided with exacerbation of hearing and balance problems on that side of my face.  Suddenly I was struck with bouts of high pitched VERY LOUD hums that were maddening, and dizziness that made me vomit uncontrollably.  I had had some hearing disturbances for decades with infrequent bouts of dizziness, but nothing like this, and frequent sinus infections left me with air cell disease.  After several ER visits and seeing several ENT specialists, the umbrella term of Meniere's was made.  I call this an umbrella term because I truly believe like in many other diseases, symptoms mimic.  Long story short, the usual treatment approach of diuretics, nasal sprays, sleeping sitting up, and other things either had no effect, or made my symptoms worse.  Indeed, I went through a month of hell after a hearing test, and I refuse to ever have one again.  I have environment allergies, but am unable to undergo shots because of drugs I am prescribed.  I was told by the "professionals" that my only recourse was what I considered barbaric surgeries and procedures.  I am very in touch with my body, and something inside me kept saying there was more to this.  Anything I said to the doctors fell on deaf ears (pardon the pun) as once they have you slotted in a diagnosis, there is little that can be done on the patient's end to sway them.  I took control, and found that Aspartame could trigger symptoms.  It is important to research ALL foods and drink, as milk contains it just as much as soda.  I switched my nasal spray to Dymista from Fluticasone, stopped taking the diuretics unless I felt it was warranted, and then took only one dose, took allergy medication when needed (but nothing "drying" that could cause mucous plugs), and on the advice of the first ENT I saw who practiced what he preached, started a daily regimen of CoQ10 100mg.  No more than 100mg per day should be taken.  Several times a week I supplemented with Vitamin B time release, and continued my twice daily fish oil, along with a once a week calcium supplement.  I learned from my primary doctor that I was Vitamin D3 deficient, and began a 50,000IU regimen once a week.  Knowing the jaw bone is influential in the inner ear function, I learned I was suffering from bone loss in my teeth and jaw.  Vitamin D enables the body to process calcium, and with my D deficiency, I suspected the middle and inner ear bones might very well be compromised.  I cut back on caffeine, started eating responsibly (to lose weight and stem other health problems), and made sure not to expose that ear to loud noise, or cold drafts.  I know many people have relied on a course of antibiotics, but this can be dangerous.  Antibiotics work by increasing one kind of bacteria flora to attack another, and excessive use of antibiotics will cause you more problems than you have now.   After almost 6 months, I started to feel something going on in my ear.  It felt as if a blob was inside that was trying to move.  I started being able to blow wads of bloody mucous from that nostril.  The tinnitus was different, and the constant pulsations of my own heartbeat which I went through for over two years non-stop disappeared.  Much of my hearing in that ear returned.  I still heard some hissing sounds, and sometimes I would get a high pitched whine, but it wasn't very loud, and usually occurred while lying down, dissipating soon after getting up.  So far, I haven't had a vertigo episode in 7 months, when before the longest I could go was 1.  My constant fear of becoming dizzy in public, or behind the wheel of a car subsided greatly because I no longer was walking around with that feeling of ear fullness, and unsteady gate.  If this is as good as it will ever get, I am thrilled.  Will the debilitating symptoms return?  I don't know, but the way I see it, if I could gain control over this when doctors failed, I'm ahead of the game.  My best advice to other sufferers is to research, experiment, and don't buy into the diagnosis, or that your only hope is what doctors tell you.  Like all illnesses, money is made in treatment, not cures, and the last thing a doctor wants to do is admit that you can succeed where they can't, especially if it's a holistic approach.  My ENT (a big shot at Vanderbilt Hospital in Tennessee) refuses to believe that my problem could be contributed by nerve damage, a reversing cervical spine, spinal arthritis or herniated discs, or even the toxicity left by chemotherapy years earlier, all conditions confirmed by previous doctors and tests.  Don't be afraid to ask questions, challenge, and seek multiple resources.  

[glhond]

    Dear Luckyman  
   Hello, I have been suffering with meniers for seven years now and have been thru every drug and nothing has worked.You do want to get off the clonzapan,,it is addicting,,and they won't tell you that.
    I recently found a company that has an herble remedy that does work.
I am a class a truck driver and heavey equipment operator that has not been able to work for over two years because of the meniers,,it  had got to the extent of not being able to drive and not being able to leave the house.The company's name is Tao of Herbs and there supplement works.
    You can contact them at tao of herbs.com and ask for clear eye and sharp ear this works,,,I regained some of my hearing on the right side and it took away most of my dizzieness,,,good luck to you,,,i hope this helps

[luckyman316]

I was just diagnosed with Meniere's today.... what are my triggers?

-Going up escalators (Feel as if I'm gonna fall backwards)
-Heights (never been afraid of them, now terrified of them)
-Chairs without any upper back/neck support on them, especially at movie theaters or even little tiny theaters
-The next day after drinking alcohol, usually wine which I LOVE
-Certain tones, such as that of a Skype call I am making
-Stress

My symptoms are not classic symptoms though. I only have tinnitus in my right ear. I don't get dizzy, thankfully, but in some of the situations above I feel like I'm gonna fall or pass out. When this all started, it happened around the same time I was going to PT for a neck issue. During this timeframe, I had a crown placed on my tooth (now I have 2 crowns back to back on molars) as well as came down with a Hep B virus. I'm uncertain of what caused the meneire's, It also led to some weight loss somehow.

That being said, my doctor is starting me on Clonazepam. I'm not sure what this is going to do for me other than treat any anxiety or panic coming with this. I'm totally convinced this is not Menieres and something else causing the issue, which will hopefully subside within a year. I'm determined to make it stop/go away