Posted Months ago with no responses, Can someone Please shed some light for me Please???
by wabs09, 1 hour ago
Hello all!! I hope someone can shed some light on my symptoms or at least has the same symptoms so that we can share our experiences and give each other some comfort! Anyway about 6 months ago, I had bent over to do some laundry and when I went to stand up I had an enormous rush in my head and I thought I was going to pass out, it felt like someone hit me in the head with a baseball bat but without the pain.. Well that feeling went away after a few seconds but was followed up by very unsteadiness, and a feeling in my head that I cant explain. It wasnt dizziness and it wasnt lightheadedness. It is something that is so hard to describe I cant even really begin except to say that its almost like my eyes and my brain were floating and my eyes wouldnt focus unless I was looking straight ahead. I went to the ER and after all of the tests they came up with Vertigo. After having read up on vertigo, Im not sure thats what I am experiencing. It just doesnt sound like I have the real vertigo symptoms. I had for the two weeks prior to the "big incident" been feeling the brain floating sensation and off balance, but I thought it was due to being tired because it was mostly happening after 4 in the afternoon. However since the "big incident" I still have that brain floating sensation on occasion that lasts from an hour to all day. I did notice that if I lie down for a bit it usually subsides but sometimes if I start moving around alot it comes back. I went to an ENT and after a few tests he came up with 31% nerve damage in my right ear and it is causing my balance problems and told me to deal with it, it is going to be something I have for the rest of my life and I will have good days and bad days, and sent me on my way. Back to the GP. She then sent me to a neurologist. Of course here comes the MRI and eeg's which both came back normal. He said more than likely I had a virus that caused damage to the nerves in my inner ear or due to the fact I had been diagnosed with a B12 deficiency at a level of 277, either of which will eventually go away in time with treatment for the B12 deficiency and the virus subsiding. Still no answers!!! Just educated guesses. Very disheartening. The problem is is that my symptoms keep changing. Some symptoms get better and then I get new ones, and these symptoms are so hard to explain. With intensive research this is what Ive come up with. These are not in any particular order of severity, generally I have these symptoms all the time.
general feeling of not feeling well, always feel like im getting sick
Loss of balance
Trouble Focusing, objects around me jump, float, bounce, blur
Loud noise makes me feel like im going to pass out
Busy environments make me dizzy and feel like im going to pass out
Sensitivity to light, glare and moving or flickering lights, especially fluorescent lights
hard to walk in the dark
poor depth perception
difficulty concentrating
frequent loss for words
forgetfulness
fatigue
anxiety and panic
lightheadedness
depression
moodiness
feel hung over every morning
tinnitus
sensitive to loud or sharp noises
ear pain
slurring words
brain flashes?? really hard to explain (like someone is turning off and on a light)
sensitivity to vibration
feeling a vibration in my eyes and forehead sometimes when I talk, like someone held a buzzer to my face briefly
Irregular heart rhythms
Brain fog
muscle weakness
sensitivity to a change of hot and cold temps and changes in the wind
shadows moving make me fel like im going to fall down
objects around me look like they are moving or I feel like im moving when not
increased symptoms of eye movement, lack of balance when chewing something crunchy
increased lack of balance during and after eating
Im sure this is not a complete list, but it is the best I can do right now. Please help me. Im at a loss for anyone to turn to anymore, I just get the run around from everywhere I go.