Help with Eustation Tube Dysfunction

[kidnurse81]

Hello.  My fiance has been suffering with eustation tube dysfunction for a little over 6mths. now.  We have tried numerous decongestants and nasal sprays as well as a round of steroids.  His ENT did allergy testing on him, however, he did not have any significant allergies.  Our last resort was to have PE tubes placed.  This only made his symptoms worse and they took them out after a couple of weeks.  Suprisingly after they took the tubes out and his ears were healing, he was symptom free.  When the holes closed up he began with the same symptoms all over again.  He has constant pressure in both ears, a fluid-like feeling (though the doctors say there is no fluid), and a stuffy nose.  He is completely miserable and losing all hope of getting better.  We are at a loss.  He has thought about having the PE tubes put back in and giving it a little longer this time to see if they will help.  We are both scared and upset and have no idea what to do at this point.  Any suggestions would be greatly appreciated.  Is there any other treatment at all for this disorder??
Thank you so much,
Amy

[godkindoffaith]

I have been dealing with the same thing for seven months several doctors only now have I received peace. I am in my second treatment of spraying four different types of solution into my nose and over a period of time it burns away the lining of my synisis allowing or helping my eustation tube to begain to work. It is slow but my ear stays open more often and I am hearing better. I still use the sprays to help move the fluid down my throat.I live in chicago and my doctor is at the Mid West Sinus Center University Head and Neck Associates. Jay M. utton M.D. I am just blessed and happy that my ear is open. I went through all of the above and for a while I though I was going crazy because the doctors said they saw nothing they kept looking for ear infection when in fact it was a sinus problem. I even had a doctor tell me that I needed a hearing aid. I knew then I was in the wrong place I just left out of his office without finishing the conversation.  Call the university and talk with them about this procedure it's painless it just burns away sinus tissue helping the eustations tube to began working. I pray you get better.  Karen

[silent sufferer]

send e mail if you need a shoulder to lean on / ear to bend.   you are not alone. ***@****

[silent sufferer]

this site is exellent.
so glad im not alone. although, my heart goes out to all fellow sufferers, no one truely understands. this has to be the hardest wall you could ever climb.
thought i was going mad,,,constant ear pressure,,, heavy head,,, struggle to swallow,,,stressed to the max. (37 yrs old) and really thinking "am i loosing it"?  
going to have grommets in 2 weeks, referred by ent. £1500 (bupa) hope its not a waist of time and hard earned money. cant wait 3 more mnths for nhs. fed up sniffing hot water and spraying stuff up my nose to no avail. many thanks for web sites like this one. i too pray  all get better soon. perserverence seems to be a large step towards the finding a cure. lee  

[silent sufferer]

leekeel @ hotmail. co. uk      in order to share leave spaces in e mail address

[sweetnsassyinky]

I am currently going through hell with pain. I slept less than 2 hours on and off last night. I have a sensation of bubbles popping in my ears. I actually got into an ENT today who ordered a scan of my sinuses (have that tomorrow afternoon). He said looks like chronic sinusitis and collapsed eustation tubes. He also prescribed 4 days of steroids (which is not covered by my insurance). I feel like I am going crazy!!! My throat hurts, I feel like I am going to have a panic attack from not being able to breathe. I am 30 years old and feel like I am 50! Any info is appreciated.

[honeystix]

Have you heard of a devise called the "Ear Popper"? At the push of a button, it delivers a gentle puff of air through the nostriles to painlessly and instantly open blocked eustation tubes. I'm tempted to buy one for airplane trips to avoid the trauma and pain I'm plagued with each time I fly. I suspect most decent doctors will have them soon.
Just search "Ear Popper" on the net.
Bye for now,
Glenn