Meniere's disease and headaches

[Julie177]

Hi, I'm a 32 year old female and I've recently been diagnosed as having Meniere's disease.  I have a roaring sound with lots of pressure in my ear while I'm sleeping, fullness and pressure in my ears, vertigo attacks (not sever enough to make me vomit just nausia).  My question is I also have been getting more headaches, sometimes they are stabbing pain, is this normal to those who have meniere's?  I've been getting headaches in the front of my head, but stabbing headaches towards the back.  thanks Julie

[skeetersmom06]

I feel as though I have stumbled upon a bunch of long lost relatives with various forms of the same symptoms/.

I have had meniere's for about 30 years... just deal with it.  In addition, I'm depressed, anxiety = on medicines for those.
The past four of five days I've had a very familiar headache that I've had numerous times and almost a vertigo feeling.  The best way to describe is a feeling like my head is a salt shaker and someone is shaking it as hard as they can.  This will happen with very little movement of my head or my eyes.  I've found no relief and have been lying around to be still which seems to help.  I've got pressure in my sinuses and they are tender to touch.

Has anyone experienced this "Shaker" sensation?

[Nukeswyfe]

I was diagnosed this past year. I am 32 years old. They did the hearing tests which found a loss in both ears (more so in the right than the left which he told me was unusual...that it is usually just in one ear) and I have the symptoms:

Crackling and ringing ears (sounds like someone crunching a potato chip sack inside your ear when you swallow). The ringing comes and goes very quickly. Usually lasting around 1 minute.

I have hearing lossing in my right ear, my low tones are suffering. I can barely hear my husband from across the room and when I do I usually mix up what he is saying.

My right ear also feels like it has water trapped in it all of the time! It is so annoying, but I have gotten used to it. It aches too sometimes so don't let a doctor tell you that there is no pain associated with MD. It isn't horrible pain but it can push the limits sometimes.

My balance most days is horrible. The thing I find funny is it is only when I am moving do I fall. I could be walking a straight line and fall over. I have great balance when standing still, unless I am dizzy.
Usually when I get dizzy it only lasts for a moment or two. If I ground myself to something It gets better.

I find also that I "see stars' a lot. It is happening more and more and I am not sure if that is the MD or what.

I suppose I am right along with the first poster here. Has anyone had problems with light constant headaches? It seems as though my head has hurt every day for the last year! I don't take medication for it because I dont want to have a rebound effect.

[RadioAstronomyObserver]

thingywhatisit,  this is interesting, I'm interested in this disease simply because my syndrome has been mis-diagnosed as Menieres and many other diseases and conditions till 1998.   Even then not all ent's and even otolyregoligists(spelling) know about SCDS.  Anyhow, the reason Im posting is that we (SCDS sufferers) know eating Salt and a few other things will change the chemical balance of the inner ear fluid which changes conditions of this syndrome.  I.E. ear feels fuller, balance becomes worse, ect...  I wonder of your finding is very similar where as a high or low magnesium level changes the same things?

[thingywhatsit]

My problem with Menieres has lasted many years, and resulted in emergency room visits because of symptoms which ressembled stroke. This is a serious condition and the dizzies became a way of life. I was given Betahestine drugs which help considerably but found something out this week which may help others. I have always used supermarket spectacles, as glasses are extremely expensive here in France. This last month, I decided I needed correct spectacles and spent the money to buy them. I also decided that my magnesium levels were insufficient and started to take regular magnesium. In the last week, the Menieres has practically disappeared for the first time in three years. I would advise anyone who has eye problems to address those problems and see if this helps them to overcome the debilitating effects of Menieres.

[teenietwo]

  For the past 12 months my husband has been just like the rest of you He awoke one night at 2 am and was taken to hospital thinking he was having a heart attack Nothing was found after extensive tests in ED They gave him 25mg Stemetil in hosp and by luch time we retned homeand at 2 pm he then started vomiting again AT 6pm he was given another injection He couldnt lift his head off the floor to get to bed
Then 2mths later MS attacked him again with vengence Another trip to hospital and it was like that until the last 2 months and the vomiting has stopped He has days now when he feels confident to drive but like you all he wakes up with headaches
So thank you I will try the Vit B2 the olive leaf extract and if they fail try the gluten free and milk free My daughter is on a milk free diet as she has the asthma and the tummy problems They all do seem inter related We have tried a salt free diet but he says that it didnt help as we didnt eat a lot of take aways or use salt in our diet much so was not a problem to stop
the tought of going on the gluten free and milk free diet sounds like their may be only air left to eat He already lost 12 kilos within the firt 2 mths and has gradually put some back on
Kev hasnt been working now for 12mths Finds reading difficult and has to wear dark glasses for the glare and is always in bed by 830pm
Kev still takes stemetil 5-10mg regularly for his nausea Is also taking Serc daily
Thank you all for your help
Kris

[sydneysun]

Hi
I have suffered from what I believe is Meniere's disease.  It has struck me multiple times so bad that I could not stand up or get out of bed (had to try to crawl).  I have had lots the tests that have shown nothing untoward (a good thing), but offered no solutions.  I have had to come up with my own.

Luckily, as my father, grandmother and now my 7yo daughter has/is suffering similar problems it has not freaked me out too much.  
As my symptoms come on with fierce intensity for anywhere between 2-6 days and go completely other times, I am luckier than most.  When it comes on I carry around chewy ginger chews (bought straight from ginger factory in QLD, Australia) in individual packets.  Blackmores natural travel sickness tablets also have it in a tablet form if you don't like eating ginger. I try to fix it naturally rather than other medicines which could have other side effects.  Also making sure I have lots of sleep, water, eliminate all stresses.  Easier said than done.
BTW - my symptoms sometimes comes with the ringing in my ears.  Other times not.  Sometimes brought on by stress, other times brought on by virus.

My daughter is now complaining on headaches, backache (around neck), blurry vision, dizziness and the most scary thing is the "falling over" (or should I say losing consciousness for a few seconds).  After falling out of the tree house 3 times, falling over down the street, in carpark, at school etc - finally got an EEG and multiple tests - doctors (inc neurologists) have no idea.  I'm starting to wonder if there is a blurring of meniere's disease and Postural Orthostatic Tachycardia Syndrome (POTS).  I have only discovered POTS on the internet ... plan to take it into the doctors and see what they say.  

Anyway - I was hoping this might help someone out there.

fallon193 - fascinated by the idea that it might be due to inner ear being infected by virus (Herpes).  Hmmm - might start my daughter on Olive Leaf Oil, which has proven in studies to help inhibit or kill the Herpes virus.  If that fixes the symptoms ... it will save me a fortune in doctors bills  :o)