Aa
worried about ears...patulous euastation tube
Hi does anyone have PET (patulous eustation tube)-when they talk, they hear their own voice very strangly and ears feel like their full of pressure. Does anyone know how to deal with this? Can this be cured? although i know i have eustation tube problems and my ears always feel clogged.
Thanks
Hawk
Thanks
Hawk
I am so happy to be reading these posts! I have had this problem for many years, and only "hard sniffing" or putting my head toward the ground helps. I only looked on the computer today to see if there was anyone else out there after one of my partners at work jokingly asked if I was sniffing cocaine! I didn't even realize my ear was plugged and that I was sniffing to get rid of it. I probably do it all the time. I am now going to try drinking more water.
I forgot this question. If this becomes so unbearable, is there a way to surgically become deaf in that ear?
I have just self diagnosed myself with this horrible inconvenience. It has only been less than a week. Seeing the ENT tomorrow. I started with cracking noises like wax build-up shortly after having my jaw surgery for TMJ 5 years ago. Sometimes the sounds were like clicking 2 rocks under water very quickly. While in Florida 2010, I caught a really bad cold. Lost my voice, congestion really bad. I was using over the counter stuff and 4-way spray. (used nose spray 14 years) My left ear got blocked which was the first time from a cold. I had my ears flushed with water to remove wax and still had a blocked ear. Went to see my Doctor who prescribed steriod nose spray and another decongestion. I was outside in Mass. recently on a warm day and started walking. That was the first time I heard my voice, breathing, soooo loudly. Comes and goes just like the majority I read here. I'm moving to Florida this June and find that the hot humid air is not good. Figures. I was also going to learn how to dive. I'm going to ask ENT tomorrow about the water sniffing. And I'll check out PatulEnd. Thanks for having this site.
So far so good with my water sniffing! Thanks Robert as if it weren't for your posts about PatulEnd actually giving true relief, I might not have tried anything up the nose! I researched them after your posts and being too cheap to buy them ;-), tried the water instead and am so happy I did. In fact, on occasion now if I'm doing something important that day and I don't want to deal with PET, I'll sniff a bit of water to assure I won't get it that day. It seems to last a few days at a time - but I've only been doing it for the month now (this summer will tell). I will report back on this later in the year.
For GlarosE - Glad that you didn't give up and found all of us who suffer with you and that you continue to look for solutions! I saw an ENT in 1996 (he was good and diagnosed it right off and suggested water (drinking) and salt to retain water. I've ended up water-logged trying to stop the PET - but it did work if I drank enough water for the most part. I don't think water up the nose is a problem as they sell saline solutions for sinus over the counter, which is water and salt; and the Patul-End drops must be water based too (maybe Yorkere will let us know what the ingredients are if the bottle says - also do they sting?). I did try the saline drops the same way I sniff up the water, and it too worked immediately - however it stings big time and I would end up with a slight earache (although no PET). Water only has the initial sting at the ear and goes away quickly. Since I only sniff up a tiny amount from the palm of my hand I can't imagine it causing a problem as it is water and should readily absorb into the body. Keep us posted on what your ENT says!
For GlarosE - Glad that you didn't give up and found all of us who suffer with you and that you continue to look for solutions! I saw an ENT in 1996 (he was good and diagnosed it right off and suggested water (drinking) and salt to retain water. I've ended up water-logged trying to stop the PET - but it did work if I drank enough water for the most part. I don't think water up the nose is a problem as they sell saline solutions for sinus over the counter, which is water and salt; and the Patul-End drops must be water based too (maybe Yorkere will let us know what the ingredients are if the bottle says - also do they sting?). I did try the saline drops the same way I sniff up the water, and it too worked immediately - however it stings big time and I would end up with a slight earache (although no PET). Water only has the initial sting at the ear and goes away quickly. Since I only sniff up a tiny amount from the palm of my hand I can't imagine it causing a problem as it is water and should readily absorb into the body. Keep us posted on what your ENT says!
Hello everyone,
I'm a fellow sufferer with PET and I live in Cyprus where the climate is warm or hot and humid 8 months in a year. The autophony (right ear) showed up in my childhood, probably after my tonsilectomy when i was 11. I also had wax removed with pressurized water around that time, something that I suspect might have also contributed. For years, the symptoms appeared around springtime, so I thought it was an allergic reaction to the weather change. Then it went away completely until next spring... When i was about 20 I had a hormonal imblalance so the doctor prescribed estrogen pills. At the same time i lost weight (5-6 kilos, which is a lot for me, as I'm quite thin). The combination of the two, along with anxiety must have been what aggravated my PET to the point that it became a permanent condition. I'm 34 and for the past 14 years it's been with me all the time. In the winter I get some good days, but I have learned to anticipate the bad days. I think this is the tragic of this situation. That we somehow get trapped, it becomes a habit and we can't let go. Of course doctors haven't been able to help me. Most of the ENTs I've seen in the past just didn't know anything about it. I felt like some of them were thinking that they were wasting their time with a hypohondriac. I actually convinced myself that I was a hypohondriac and that i was overeacting, until i started going online looking for solutions about a year ago. I found other people with the same problem and realized that this is actually an objectively bothersome condition.
Through my experience i have reached the same conclusions that you have. That stimulants, dehydration, emotional stress, physical exercise (which causes dehydration), pregnancy (therefore hormonal havoc!!) can cause or aggravate this condition. I found that the measures that i have taken have enabled me to manage but not to cure the PET.
I have read some books on Ayurveda. That information has shed some light. I bet we are all thin body types, with a sensitive nervous system and a tendency to be restless. That is a vata (air)type. We need a lot of water and good oil in our diet (olive, sesame, clarified butter).
I found quite a lot of relief by sniffing up sesame oil and letting it settle while lying down (this is an ayurvedic practice). I mentioned this to another group on another site I was writing. One of them asked her doctor and he told her that it might actually be dangerous in the long run, if some of the oil ends up in my lungs. I still do it from time to time, but i got a bit scared.
Which brings me to the water up the nose technique, deviced by Lotus B. Sounds great but what if the same risk is entailed? Are you seeing an ENT Lotus B? Can you ask, perhaps?
I saw an ENT last week. Palestinian who studied in Germany and has connections with an Otorinolaryngology Centre in Germany. He actually knew quite a lot about my condition. He was against the standard proceedures (fat, silicone, tube insertions). He said he performed them in Germany but the patients only had temporary or no results. There is also risk involved... He said he was going to call the centre and try to find what is considered most effective now. He called me last night with news. He said he looked into alternative solutions, because he didn't find any of the surgical solutions to be effective. He said that what he found that actually works (many patients have had good results) is a type of physiotherapy for the ET. I told him I had read about it (someone had mentioned it on another site). First the patient has to check whether the ET has atrophied and then there are are therapy sessions where the patient learns how to train the ET to function properly. Unfortunately it is not offered in Cyprus, but he said he will gather more information when he travels to a conference on the 23rd of March and he will call me again.
As soon as I have more information i will let you know.
Unfortunately i cound sound very motivational at the moment. It's springtime... but i know you... of all people, can at least understand.
Thanx.
I'm a fellow sufferer with PET and I live in Cyprus where the climate is warm or hot and humid 8 months in a year. The autophony (right ear) showed up in my childhood, probably after my tonsilectomy when i was 11. I also had wax removed with pressurized water around that time, something that I suspect might have also contributed. For years, the symptoms appeared around springtime, so I thought it was an allergic reaction to the weather change. Then it went away completely until next spring... When i was about 20 I had a hormonal imblalance so the doctor prescribed estrogen pills. At the same time i lost weight (5-6 kilos, which is a lot for me, as I'm quite thin). The combination of the two, along with anxiety must have been what aggravated my PET to the point that it became a permanent condition. I'm 34 and for the past 14 years it's been with me all the time. In the winter I get some good days, but I have learned to anticipate the bad days. I think this is the tragic of this situation. That we somehow get trapped, it becomes a habit and we can't let go. Of course doctors haven't been able to help me. Most of the ENTs I've seen in the past just didn't know anything about it. I felt like some of them were thinking that they were wasting their time with a hypohondriac. I actually convinced myself that I was a hypohondriac and that i was overeacting, until i started going online looking for solutions about a year ago. I found other people with the same problem and realized that this is actually an objectively bothersome condition.
Through my experience i have reached the same conclusions that you have. That stimulants, dehydration, emotional stress, physical exercise (which causes dehydration), pregnancy (therefore hormonal havoc!!) can cause or aggravate this condition. I found that the measures that i have taken have enabled me to manage but not to cure the PET.
I have read some books on Ayurveda. That information has shed some light. I bet we are all thin body types, with a sensitive nervous system and a tendency to be restless. That is a vata (air)type. We need a lot of water and good oil in our diet (olive, sesame, clarified butter).
I found quite a lot of relief by sniffing up sesame oil and letting it settle while lying down (this is an ayurvedic practice). I mentioned this to another group on another site I was writing. One of them asked her doctor and he told her that it might actually be dangerous in the long run, if some of the oil ends up in my lungs. I still do it from time to time, but i got a bit scared.
Which brings me to the water up the nose technique, deviced by Lotus B. Sounds great but what if the same risk is entailed? Are you seeing an ENT Lotus B? Can you ask, perhaps?
I saw an ENT last week. Palestinian who studied in Germany and has connections with an Otorinolaryngology Centre in Germany. He actually knew quite a lot about my condition. He was against the standard proceedures (fat, silicone, tube insertions). He said he performed them in Germany but the patients only had temporary or no results. There is also risk involved... He said he was going to call the centre and try to find what is considered most effective now. He called me last night with news. He said he looked into alternative solutions, because he didn't find any of the surgical solutions to be effective. He said that what he found that actually works (many patients have had good results) is a type of physiotherapy for the ET. I told him I had read about it (someone had mentioned it on another site). First the patient has to check whether the ET has atrophied and then there are are therapy sessions where the patient learns how to train the ET to function properly. Unfortunately it is not offered in Cyprus, but he said he will gather more information when he travels to a conference on the 23rd of March and he will call me again.
As soon as I have more information i will let you know.
Unfortunately i cound sound very motivational at the moment. It's springtime... but i know you... of all people, can at least understand.
Thanx.
Have an Answer?
You are reading content posted in the Ear, Nose & Throat Community
Think a loved one may be experiencing hearing loss? Here are five warning signs to watch for.
Discover the common causes of and treatments for a sore throat.
Learn about what actually causes your temperature to spike.
Find out which foods you should watch out for.
Family medicine doctor Enoch Choi, MD helps differentiate between the common cold and more threatening (bacterial) infections
Dr. Steven Park reveals 5 reasons why breathing through your nose could change your life
