Yeah that machine is loud...I was in once for almost 3 hrs....not fun, but a way to get answers.
My fingers r crossed for u too : )
Went in for my MRI today they did the c-spine first, then brain w/o contrast, then one with. I have had a super migraine all day and even with ear plugs that machine is loud... Brought tears to my eyes lol I requested copies and will pick them up tomorrow after the report is done too. Crossing my fingers and holding my breath.
No worries : )
Please let me know how it goes <3
Perfect! I was wondering how to get those, thank you for being there for me it means the world.
Good Luck!!
When u sign in for the MRI tell them u want copies of the MRI and the report...u may have to sign something as the report takes a few days to prepare, but they should be able to give u a disk with the MRI's on b4 u leave.
Just saw my dr. and I have a MRI of my head and neck tomorrow, and then one with contrast. He is open and understanding and told me all he is checking for which includes Chiari. So I will hopefully get answers soon
Yes it is...I had that while at my Chiari Drs and the nurse made a comment....I said my face and eyes feel odd and numb and she said they r also drooping....
Some have experienced more of a Bells Palsey type of droop too....
As of 15 min ago my headache got worse on my right side above my eye and now my right eye is drooping is this normal for Chiari ??
No worries...good luck with the Dr and if u do get a Dx of Chiari u can also post in the Chiari forum here on MedHelp-
http://www.medhelp.org/forums/Chiari-Malformation/show/257?controller=forums&action=show&id=257&camp=msc
Thank you so much for writing back, it is really nice to know I am not losing my mind. It makes me feel a lot better :) I will definitely talk to my dr Wed morning about getting an MRI.
Hi and welcome to the EDS forum.
I was dx'd with Chiari and it was on my cervical spine MRI and then I have a brain MRI.....
Do u have copies of MRI's of these area's...? Have u had these area's MRI'd?
The symptoms can be from EDS, POTS, MS, lymes and lupus as they all have similar symptoms...so MRI is the best way to get a dx, but not all Drs will inform u of the findings as far too many just do not feel Chiari has Significance,,.
U could have Chiari.,..the symptoms do fit...but u need the MRI and the reports,...going forward always ask for copies of all tests and reports.
I have Chiari and EDS and tethered cord.....if u have more questions...just ask.