Hi and welcome to the EDS group.
Not all with EDS will have subluxations....but a 2 on the Beighton scale is considered hyper mobile....
There r several types of EDS, and the top thread here has links to videos by a Dr that also has EDS, each one explains the diff types of EDS we all may have.
For the record, I do have the subluxtions...joint pain, soft skin, but it is not as stretchy as they describe it typically is....I do also bruise easy and am slow to heal.....
But never when I was growing up did I consider myself flexible.....
I think like chiari we all will have variations on the list of symptoms, but we all need to get it checked out to see just how it is affecting us.
Thanks, Selma. I watched some of the videos, and they were very helpful.
Glad they were helpful, do u still feel this could be a dx for u?
I really feel it is like Chiari, u need the right Drs to help u with this.....
Sorry for the brief response earlier. My brain was foggy. :P
I do think it's a possibility. I have a lot of the symptoms, as do other members of my family. That's the main thing that's making me wonder. Even my grandpa was pretty bendy, and he lost all his teeth before he was 50. My mother has a lot of the same symptoms I do, and my little sister has the same sort of joint pain I had as a child.
It's definitely something I think I should look into as soon as I figure out how to work around my financial limitations.
I know it can be so difficult to afford to find out what is going on and treat it....stinks.
Please keep me posted : )
It does stink. But hopefully I can figure something out.
Thanks! I'll let you know if/when I get somewhere.