yes, a Dr will be able to tell u what dosage u require...but also be advised that not all Drs test for this ....not all typical magnesium tests show the low levels from what I am told it is a more complex test they do not do for a routine check.
Thanks again! Perhaps I should have a trip to the Dr to get my magnesium levels checked!
Wow thanks for some great suggestions! I just started trying a combo of vitamin C and L-lysine, because I heard collagen could be the issue. However, maybe I will have to try this instead!
U r so right, those with EDS do not absorb vitamins and minerals the way we should and often are low not only in Vit D, but B12, and magnesium and potassium,.....
Many are not aware of the magnesium and Vit D link....u need magnesium in order to absorb the D....and not many Drs check the magnesium as there is more then one test....so do ask about the magnesium as well.
Hi! Have you had your Vit. D levels checked? Many EDSers have extremely low Vit. D. Vit. D affects the entire GI tract. There are Vit. D receptors in stomach cells and the esophageal sphincter. Low Vit. D is related to slow gastric emptying.
My EDS son had his Vit. D checked when he developed scoliosis last year. His level was 6! (I think optimal range is 50-60) His GERD issues of two years are pretty much gone now, after supplementing Vit. D (Doctor put him on high-dose therapy.)
I'm not sure Vit. D is what corrected his problem, but I believe it had a lot to do with his improvement. He also took a supplement of zinc-carnosine, which helps a lot to heal the stomach lining. Zinc-carnosine is inexpensive and worth trying.
My son is much happier these days! He can eat anything he wants.
Hope you get some relief soon!
A good rheumatoid Dr should be able to ...look up the Beighton scale or look to google joint hypermobility testing and u should find the Beighton scale chart...even if u score a 2 u r considered to have EDS.]] Do u bruise easily, slow to heal?
I also have EDS and GERD issues and I have a few other issues as well....but my Drs informed me as to how this was affecting me.
Hang in there.
Hi, thanks for your response!
I have modified my diet to an extent but I am still having troubles so that is why I am searching for a possible underlying cause. What type of doctor can diagnose joint hypermobility or such things?
Hi...yes EDS can be part of the issue....with EDS the delayed emptying and slow motility are common, as well as hiatal hernias.
Have u modified ur diet? Most meds will not work well if u continue to consume foods and bevs that r triggers.
With the heart pals and anxiety u could have the vagus nerve involved....have u been tested for this ?
The mitral valve issue is also an EDS issue....it is a type of EDS that affects organs....so do get tested and have ur mom tested as well,