Looking for answers

[Sexybare]

Was wondering if some of ya'll could give me some info. How were you diagnosed and what are different symptoms? Im just tryin to learn if I myself should be tested. Just looking for more info from everyone. Like how did the dr finally dx everyone.

[jane_pain]

Hi there,

What symptoms do you suffer from?

I'm newly diagnosed with Hypermobility syndrome but have found that there are alot of other syndromes/diseases that are similar. I have just been diagnosed after 13 long years so i myself are new and looking for more answers! I actually after researching into soooo many things came across HMS myself and suggested it to the doctor and he tested me and said that this was definately what i had...so basically my advise would be research then ask but dont give up until you find what or why you are in pain!! My main pain is in my joints such as hips, back, neck, knees, ankles etc but i have anxiety amoung lot's more symptoms! Look at your family to see if what you have maybe linked?

Hope that helps a little, and i havent gone on too much ha!

Jane_pain x

[MissyPrissy]

Hi Sexybare,
My dx came strictly from past med. history and examination.  Also, I had extensive bloodwork to rule out other types of arthritis of the inflammatory kind.

I knew nothing about any syndrome linked to hypermobility and was surprised just how it put puzzle pieces together.  Find a Rheumatologist and get checked out if you haven't done that yet.  All the best :)

[selmaS]

  Hi...as I mentioned to u in the Chiari forum....my chiari drs dx'd me and if u review the links posted above that Dr Diana did they will help u understand what EDS is and how it is dx'd.

Even the pic at the top of this forum shows some of the ways some of us can move our joints, but that does not define who has and does not have EDS and y I feel u should take time to review the links.

  "selma"