I am a mid 30's mother of a 6 year old boy and after a very long life of ignorant doctors and hospitals, I have been diagnosed with Ehlers-Danlos Marfanoid Syndrom. I have been looking it up. Umm... I am not sure what to feel validated, scared, angry, there are so many different emotions to many to name. I don't know. But, I do know that I don't understand it. I live in BFE. Somebody please help I don't know what or where to go from here.