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Avatar universal

Support?

I do not have EDS, I apologize right now for any ignorance.The mother of a very close friend of mine however has the hypermobility type as do both if his half brothers. My friend remains untested, it scares him to death, understandably. My question is what is the best kind of support that I can offer him and his mother.
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620923 tn?1452915648

  I was not DX'd until I was 48....so I did not have any major symptoms or complications most of my life either.....but once I was educated on EDS I can now look back and see just how I was affected by this condition.
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Avatar universal
Thank you. I will continue to ask questions. I feel that it may be worth mentioning that he just turned 18. He expects to be diagnosed with it when he is tested, but there don't seem to be any major red flags or complications at the moment.

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620923 tn?1452915648

  Hi and welcome to the EDS forum.

Support is understanding that they may have to turn down an invite somewhere due to how they feel......and continue to include them...Most of us loose friends and  even closeness with family as they take our no shows at events as a way to just avoid them all....when it is just we are not able to be out and about due to pain.

You may also want to educate yourself on the condition as it is another way to understand  what someone is going thru....

There are different types of EDS and some can be scary...especially the vascular type....so,, let him know the best way to move forward and lessen his worry is to know what he is dealing with instead of imagining...

You may also want to have them both join a group like this so they do not feel alone...it is helpful to talk to others that know how  they feel....

Thank you on their behalf for reaching out to find out what you can do....I am sure they appreciate you and your friendship.

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