Hi, I'm sorry to hear your in pain, but there is a bright side. In most cases endometriosis can take years and years the diagnose in my case I have symptoms from 11 years old was not diagnosed until I was 22, but now that you know you have it you will have to accept that at the moment there is no cure, this is not the end of the world, there are treatments
I'm so sorry to hear what you're going through. Endo really is such a debilitating disease! And it's really tricky and confusing how it presents itself and how women feel pain. I think the reason you're having more pain right now is because you just recently had the surgery. I read and was told that the first couple periods are very painful after because everything inside is sore. If you do decide eventually to have another surgery, go with an endometriosis specialist. You can search for one near your area online, or might even be worth traveling for it. They are better at these surgeries, they've literally done thousands of just endo surgeries, they know how to get it out with the root, and where to look for it. I hope you feel better soon!
thanks for being such an endo warrior and answering everyone's questions! It helps women a lot :)
Actually it is my call to make. It is not about disagreeing.
This board is for people looking for help not being told "It's not the end of the world" because it is for some people as well as a triggering comment. So yes I will excuse people when I feel its necessary.
I will try to find an endo specialist in my city and get an appointment once I'm in less pain and can travel. I think we have an endo center which specializes specifically on this. I hope I can find a good doc there who can help. Thinking about another surgery is making me depressed. I don't have medical insurance and need to pay for everything in cash. It's rather expensive. In my country if you take health insurance, they only cover bare minimum for first two years. So even if I get insurance it isn't helpful as of now.
I'm making changes in my diet. I'm vegetarian so I'm only making few changes like adding more nutritious foods and watching out for foods high in phyto-estrogen like soy products.
The pain is still the same. I had a talk with my bf about my health and future plans about having kids etc. We are still discussing various things like treatment options, surgeries etc. Bf said no matter what he plans to stick with me. I was scared he would leave me. We may get married soon and that's the only good news. It made me happy though I feel awful cuz of pain.
I'm currently tracking my pain levels everyday to get an idea of when to expect it so I can pop a painkiller before it hits me. My doc told me to take painkillers "before" pain starts. Until I find a specialist I will have to manage myself with heating pads, rest etc.
Doc told me to exercise but I can hardly move on some days. I'm still struggling to add exercises on regular basis.
I miss my good old days when I used to dance :( I hope I can dance and play with my dog like before. Currently only playing fetch.
Many people including myself have done the "diet change" including Paleo, vegan, endo diet etc.. List goes on. Some found improvement I did not. Well I can't say I didn't. When I did paleo not having grains at all did help my bowels.
Do you need help finding a specialist in your area?