Endometriosis Community
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Avatar universal

Endo or just pelvic adhesion?

Hi everyone! I'm new here. I had one surgery 3 years ago to remove uterine fibroids and one Chocolate cyst on my right ovary. I was on pain free for a couple of years. Since the end of 2014 I started having pain before my period then it lasts at least 10 days even after my period flow stopped. Most of time the pain sets on my right lower quadrant, but it could move to the left and middle below the belly button. The pain hurts my waist/lower back and radiates to my right leg. I also get very bloating when the pain is on. My blood test/urine test/Ultrasound/CT/Colonoscopy all came out clear. They found a 3mm calcification in anterior abdominal wall on CT scan but was not sure how it related to my pain. They gave me diagnosis IBS. One doctor told me I might have pelvic adhesion from previous surgery but he can do nothing about it. The pain goes on when my period is due then goes off about 10 days after period ends. It has been a cyclic pain for over a year now. I’m so exhausted taking pain medication in order not to miss my work. I’m in pain 15 of 30 days of every month which is ridiculous. I feel I might have endometriosis but this only can be tested by Laparoscopy performed by Endo specialist. I’m living in NYC area. Anybody has any suggestion? I don’t know what to do at this step. I have been seeing so many doctors but the answer always was “NOTHING!” I appreciate any answers here!!
6 Responses
136956 tn?1425606272
It def sounds like endo to me. It is possible that all of the endo was not removed properly the first time.

When you had the endometrioma removed did they drain it? How as that taken care of? Do you still have that ovary?

You live in an amazing area with awesome surgeons at your fingertips.

Dr Orbuch is one of my favourite american surgeons. I met her and have talked to her and know many who have had surgery with her. She cares deeply and listens to you talk.

Dr. Iris Orbuch
202 Spring Street, 2nd Floor (http://www.nygyn.com/),
NY, NY 10012
T: (212) 343-3040
F: (212) 343-3036

Specialisation: GYN only
Bowl/urinary tract surgery: Unknown

Here are some other names that people speak very highly of in the endo community.

Dr. C.Y. Liu
NYC Women’s Robotic and Minimally Invasive Gynecology (http://www.gyndr.com/nyc-laparoscopic-surgeon-cy-liu.php),
872 5th Ave,
NY. NY. 10065
T: (212) 988-1444
F: (212) 988-1755
E: ***@****
W: http://www.cyliu.com/

Specialisation: GYN only
Bowl/urinary tract surgery: Does some of own urinary tract and bowel work.

Dr. Tamer Seckin
872 Fifth Avenue (http://www.drseckin.com/),
New York, NY 10065
T: 1-212-988-1444
E: ***@****

Specialisation: GYN only
Bowl/urinary tract surgery: Performs some bowel and urinary tract work himself and is assisted by a urologist and colorectal surgeon in complex cases.

Hope these help :)
Avatar universal
Thank you so much for the info! It shed the light :) I had robotic surgery removed fibroids and ovarian cyst. They kept my ovaries but found both of follipian tubes were blocked.
Avatar universal
I had the surgery in 2012. I will try to reach out to Dr Orbuch!
136956 tn?1425606272
Awesome keep me updated :) She is an amazing doctor and good bedside manner :)
Avatar universal
But unfortunately I have checked her online seem like she does not accept my insurance :(
136956 tn?1425606272
I think you should call. I know of many that have worked with her with the insurance issues.
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