Endometrial after Hysterectomy?

[jewellz66]

Hi. I am 42 years old and was just told that they believe after having an Ultra Sound done, with that wonderful magic wand.  That they are pretty sure I have Endometrial Cancer?  About 18 years ago I had a hysterectomy because of Endometriosis. They removed uterus, cervix, left ovary and both fallopian tubes.  All they left me was my right ovary.  For a few years now I been having problems with a mass on my right ovary. It measures 5 x 6 cm.  I have alot of pain, the even makes my right pelvis bone hurt, the pain goes into my groin and down the front of my leg.  My groin also has a large lump in it.  I have nausia, diarrhea, frequent urination, swollen abdomen, fatigue, hypertension.  Most everyday now, the pain and pressure gets so bad that I feel like I am in labor and about to give birth.  About 2 months they found a second mass about 3 x 5 cm. So now there are two masses.
My question is, Is it really possible that I have Endometrial Cancer on my ovary when I had a hysterectomy done 18 years ago?  If it is possible, how does that happen?   I thought once the uterus was gone, so was the endometriosis no matter benign or not?    Specially after 18 years?!

[aggiegirl91]

I'm so sorry to hear what you're going through.  I'm going in for an endometrial biopsy next week and I'm trying not to worry.

As for the question about endo after a hysterectomy - endometriosis can still be present if the ovaries are removed or not.  Doctors are not always able to find every endometrial cell that may have implanted in your body.  So, even though the uterus or ovaries are removed the endometrial cells that are left behind will continue to grow.  I've been at stage 4 endo for nearly 10 years and have known a number of women through support groups that have had hysterectomies - including the removal of ovaries - that have had to have repeated surgeries later for endometriosis.  

[melo1224]

Wow, I too am very sorry to hear this. I hope they are wrong. Please update us on what they find. I had cancerous cells and I had to have surgery with an oncologist about 10 months ago. My cells were the less common kind called Adenocarcinoma which they say is more sporatic and aggressive. They feel they have all the cells and my paps have been clean so next month if it all is clear I will be released from the Oncologist back to my regualr GYN. I haven't had kids so they say once I have kids I should have a hysterectomy just to be safe.. After reading this I believe I will insist they take everything!!!! Thanks for sharing your story, it could possible prevent me from making a big mistake of leaving an ovary for hormones. Good Luck and God Bless

[ticked]

I am really sorry to hear this, since I as well have endo and i have to look into the future with the possiblities of this happening.  Yes infact you can get it because they left the ovary. The doctor should have removed it all.   The uterus has nothing really to do with it.  It could possibly be just endo that is back.  Are you menapausal (sp?)