YES YES YES!!! I had chronic nausea for over a year before I had my surgery. I was on the pill at that time too. The pill didnt help for the nausea at all. I also had severe migraines that I was hospitalized for as well. Since my surgery and being on the pill for 6 yrs I have only had 1 migraine so I truly believe my migraines are hormone related.
I would go find yourself a gyno that specializes in Endo and have a lap done to see if there is endo. That is the only 100% for sure method of knowing.
I lived in misery for years with all the symptoms I had, dont wait too long
Women who have Endometriosis should not be on birth control, although doctors will tell you it is OK. Birth control pills inhibit bleeding and this is a problem with Endo, because endo already has a problem getting rid of the menses in the proper way. With Endometriosis the sloughing off of the endometrial tissue is found outside of the Uterus (and often in the entire abdominal cavity and around the bowels). Which is where some of the pain occurs from. Other things that could be causing the pain are adhesions, fissures, adenomeiosis (thick uterus caused by Endo), and the like from endometriosis. Your able to see a GYN and have an internal ultra sound right there in the clinic office, to see if you have any cysts or other tissue overgrowth indicative of Endo.. More serious diagnosis may be suspected but don't be alarmed until or if you NEED to go further for a laperoscopy.
Remember, endometriosis is ESTROGEN dominant, and when you take birth control your doing more harm than good. Endo is an auto immune disorder too, it doesn't often recognize itself and can make its own body ill with something as simple as stress in ones life. Food for thought.
I am sorry but you are mistaken. The right bcp does not cause more harm than good. Not all women have invasive endometriosis so the pill is affective if taken continuously. It's when someone hasn't been diagnosed with the disease and they develop deep infiltrating Endometriosis is when it's not affective completely. There has not been enough research done on this disease to find out if you have Endo without doing a lap to see. The bcp is wonderful so use for people who's hormones are all over the place which is the case for many people with Endo. It's used to suppress the Endo. Yes it is estrogen dominant but a women needs estrogen as well. This disease is a catch 22 you are damned if you do and damned if you don't. If I wasn't on the pill for the last 7 yrs I might have killed myself. I am not saying that just to say it I really would have. I had a great surgeon but that was 15 years later. If I come of the pill I not only still get pain but mentally I am not okay because the pill keeps Amy hormones balanced
Rambo do you have endometriosis ? Just curious. I respect most of what your saying but I do not agree with your comment about he pill. Sorry.
I can't express enough how wrong you are about the pill. Please stop giving false information about this disease. I have lived it for 25yrs and researched it.
I have read your profile and sent you a message. I am sorry you are going what you are going through but everyone is different and reacts to different medications. No two people are the same.
I have tried the pill twice, first time I bled so bad I ended up in hospital from weakness. Second time, severe migraines and worsened nausea and pain. I also stopped getting my period.
So I am reluctant to go back on any hormones :(
See you are like my sister. The opposite effect when it comes to the pill. For me it takes away the migraines, nausea, and pain. This is why trying different methods help to see what works for you.
What pills did you try do you remember the names?
Are you booking a surgery soon?
It's unfortunate, first one was yaz, second one was called microgynon?
I have booked in with a gyno for oct 29th, I will ask her about the surgery.
Hmm I think everyone is different and its good to try different once. Marvelon is a low dose BCP and the doctor is surprised at how well it works for me.
Let me know what the doctor says :)
Microgynon is supposed to be low dose too :s
I will let you know thanks
Just an update for everyone, I'm doing a 3d ultrasound tomorrow after visiting a gynaecologist he suspects bowel endometriosis. He wants to do a laparoscopy, but I'm not keen on being opened up if he isn't 100% sure. Will a 3d ultrasound show bowel endometriosis? Of the any people they diagnose after laparoscopy, I'd like to know how many end up NOT having the disease? Does anyone have any knowledge about this please? Thank you!
I have heard people say that they for sure thought that they had it but when they had a lap they found nothing. It wont hurt to have a look to just to find out yes or no. I have found more that people have responded that yes they did have it more than no
Keep me updated
Hi ticked, thanks for your response, since you were diagnosed, did you have any on your bowel? Did your endo show up on ultrasound?
Before my surgery I was told I had ibs for 15yrs I never believed that. No ultrasound or cat scan picked up on it. I posted a link on the Endo board of my story maybe read it over. I was misdiagnosed for 25yrs. Part II of the story they are posting about what they found during surgery. It might help
The scan came back and the doc didnt find anything except for one if my ovaries looking poly cystic. I used to have pcos about 4 yrs ago but then it 'went away' once I lost 17 kilos. So now that he's ruled out large endometriosis and the adhesions, I have to wonder whether I should do the laparoscopy to find out,.,,,
And thank u il have a read
I have endometriosis and I feel your pain , from what ive heard and felt , yes its common to get nausea all the time , i take alot of gravol , or have it on me just in case because for me it comes in a flash , sounds like you most likely have endometriosis , perhaps seek help to be put on a birth control pill .
Thanks I'm considering the mirena...I keep loosing weight though, can't be from endo can it?
I got dianosed 9 months before my wedding with endo. I too have extreme nausea. It was so bad I did not want to leave the house. I thought people would think I had an eating disorder because I'm tall and thin. I have gotten some relief from zofran and acupuncture treatments. I also try preventive therapy with supplements. Good luck. I have been there...
Lena go get tested for Celiac Disease to just to rule that out.
I have already been tested, I have the genes but no celiac antibodies. Thanks for the suggestion though.
Lana, I've had chronic migraines for years, nausea since the middle of last year and since my surgeries (also had a mirena inserted) its gone to vomiting, unable to keep anything down or no appetite at all. I seriously don't enjoy food, which is weird I've lost 20kg since September.
I tried yaz, microgyn 25, microgyn 35, microgyn 50, diane and a few others I can't think the names of (its 1:40am here) none of them helped.
I live with chronic pain (RSD) due to surgeries, you can read my story below called update after surgery.
Have you gone in for a lap? I see my new specialist on Friday to book surgery number 8 since May last year.