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Endometriosis on the bladder
Hi all, I had a laparoscopy one month ago and my doc found and removed stage II endo from my uterus and bladder. My symptoms had been urinary frequency and urgency all the time for a couple months, and some pain, not just around my period. In fact we thought I had interstitial cystitis until a cystoscopy ruled that out. I'm still dealing with the urge to urinate quite often even a month after surgery, and certain foods/drinks seem to make it worse. Has anyone else had this experience after endo was removed from the bladder?
I know it is frustrating esp since Tomatoes, onions and garlic are my most favorite ingredients in the world :( Love to cook
Yes, I'm still staying away from the worst offenders on the list, not a very fun diet but it's okay.
Thank u, hope you find some relief soon. My urine has always been clear, but when I has the cystoscopy I had been taking Elmiron for IC for a month, so I've been worried it might have affected the results. I may try again with it out of my system.
I am going to give you some information as you sound like me.
I was diagnosed with Stage IV Endo in 2007, Had bladder resection because the Endo was deep and the ureters were involved. I was under the assumption at the time that this surgeon only did excision when in fact he used laser on my bladder. Years later I was in excruciating pain with my bowels and bladder. Could not have a BM with an Enema and I was peeing up to 60+ times a day. I would either get this intense urge to pee with urethral spasms I would go to the toilet and dribbles would come out it was so painful. I would have to walk around for like 10 then go again. By the time I was finally booked for surgery this year I was peeing myself with no sensation to pee.
During the 5 yrs from one surgery to another I had a cystoscopy done and I was told I did not have IC.
My surgery this year they found carbon residue on the bladder flap and as per Dr. Redwine (Pioneer of Endo and amazing surgeon who is now retired) said it is caused by the use of the laser. It mimics a splinter so you can imagine the pain right? Also there was more Endo on my bladder in which she did not remove and she left one of my ovaries and ureters embedded into the pelvic wall. UGH..
That being said I realized that I am not going to get the proper treatment in here so I am trying to get my insurance to okay out of country insurance in Atlanta Georgia at the CEC with Dr. Sinervo. The process is in the works and he will also read your results of surgery and tell you what the problems could be. He told me that I infact had IC. He could tell by my elevated white cells and pus in my urine all the time and the symptoms that it was IC. So please don't rule it out because it goes hand in hand with Endo
I was diagnosed with Stage IV Endo in 2007, Had bladder resection because the Endo was deep and the ureters were involved. I was under the assumption at the time that this surgeon only did excision when in fact he used laser on my bladder. Years later I was in excruciating pain with my bowels and bladder. Could not have a BM with an Enema and I was peeing up to 60+ times a day. I would either get this intense urge to pee with urethral spasms I would go to the toilet and dribbles would come out it was so painful. I would have to walk around for like 10 then go again. By the time I was finally booked for surgery this year I was peeing myself with no sensation to pee.
During the 5 yrs from one surgery to another I had a cystoscopy done and I was told I did not have IC.
My surgery this year they found carbon residue on the bladder flap and as per Dr. Redwine (Pioneer of Endo and amazing surgeon who is now retired) said it is caused by the use of the laser. It mimics a splinter so you can imagine the pain right? Also there was more Endo on my bladder in which she did not remove and she left one of my ovaries and ureters embedded into the pelvic wall. UGH..
That being said I realized that I am not going to get the proper treatment in here so I am trying to get my insurance to okay out of country insurance in Atlanta Georgia at the CEC with Dr. Sinervo. The process is in the works and he will also read your results of surgery and tell you what the problems could be. He told me that I infact had IC. He could tell by my elevated white cells and pus in my urine all the time and the symptoms that it was IC. So please don't rule it out because it goes hand in hand with Endo
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