I have Stage IV and I was on Lupron 3 times for 6 months with Add back therapy but I didnt take the add back for the last time I did it.
The side effects I had were joint pain, hot flashes, and emotional outbursts with depression. I didnt like the way that made me feel at all.
Before that and after I was on Lupron I was on Marvelon which was pretty effective for me.
I now take a somewhat new med called Visanne. It is made for people with Endo is a progesterone only pill but it is not a contraceptive. It is similar to Luprons effects and the only side effects I have gotten are little bumps on my face, neck and chest, almost like small pimples but they are not read just raised as well as being emotional.
Did your doctor prescribe add-back? If not I recommend that you ask for it, it will help with the side effects.
achilles2
Hi Arpeck! My 28 year old daughter is having a lap done next week for stage 4 Endometriosis. Her high risk ob/gyn told her he would not use the Lupron on her because of all the horrible side effects. He will insert a Merina IUD during surgery to hopefully stave off quick growth. He is also doing a dye test to see if her tubes are open. He told her that as soon as she has her last child, she will need a hysterectomy. If she doesn't have children within a few years, she will most likely have to undergo another lap to remove more endo and fix pain. Good luck!!!
Hi there! Sorry to hear about your endo. I haven't had any dealings with lupron YET, but I may in the future. I was just curious as to why they didn't try to unblock them during surgery? I also had to have a hysteroscopy and laparoscopy for my endo, but the hysteroscopy was for a polyp in the middle of my uterus. Sorry for sounding nosey if I do, I just always thought they could unblock them while they were in there?
I'm scared of the side effects from lupron as well. A pill I can stop but a shot has to wear off. I'm 33 and have been married for 13 yrs now and ttc for 8 of those. Like yourself I've lived with the pain, always have but I don't plan on living the rest of my life like this. I can't take it anymore :(. Probably going for a 2nd surgery soon, gotta get my husband in for a semen analysis and we'll go from there as what to do. Anyways, sorry for blabbering lol. Good luck hun!!