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Endometriosis Community
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Avatar universal

PAIN

Hello all!

My name is Lauren and I have had endometriosis for about 5 years. After using only birth control for the past 3 years, the pain was getting out of control and my doctor decided it was time for my first surgery. Last January (2011) I had my first laparo, with good results. My doc said he got a lot of adhesions and endo out. However, within a few months the left lower quadrant pain was back again. My doc put me on Lortab 7.5s until I had time for another surgery. I had another laparo, with more incisions this time, in December of 2011. It is now March of 2012 and I am back on the Lortab 7.5s everyday. My doctor said I have endometriosis, adhesions, and adenomyosis. He put me in a menopausal state before the last surgery to slow the endo growth; however, I started having night sweats and hot flashes. Now I am on estrogen to reduce the menopausal symptoms, but I am bleeding again and having INTENSE endo pain. My doctor doesn't seem to have a better treatment plan except narcotics and surgery and repeat. Does anyone have ANY suggestions so that I can lead a somewhat functioning life???

Thanks for reading :)
Lauren
4 Responses
Avatar universal
Hi Lauren
I had my first scope for endometriosis and adhesions when I was 17. Ten yrs later I had a second surgery for the endometriosis and ovarian cyst. I only had the pain for a couple of months before both surgeries really bad where I needed narcotics. My dr kept me on bcp and then I switched to depo provera only because it was easier for me. Maybe you have the endometriosis still on other organs that they couldn't get to that is causing you pain? Or you are having other trouble on top of the endometriosis? I dont know but I would suggest looking into a second opinion,the extra money it costs to see someone else would be worth getting out of pain and having piece of mind. If you don't know who to go see call your local hospital and ask for their physician referral service and they can give you the information you need. Your so young, you have your whole life ahead of you. Hope you feel better soon and GeV the answers you are entitled to :)
Avatar universal
My first thought is you need to get a swcond opinion. I was having problem with my original GYN as well and I got a second opinion and it has been a life saver. It can't hurt. This is where I would start. Some drs. just are stuck in the routine of what they always do and aren't willing to change this. So by seeing someone else you might be able to try other treatments and get back to normal.
Avatar universal
i have had endo for 8yrs now still in pain every single day.  I even pee myself when i can't get to bathroom in time. it is bad. the doc said after last lapr, i would be better but he sure lied. it never goes away, all you can do is just live with it and take meds. god bless anyone who has or thinks they have it.
Avatar universal
have they checked your Interstitial cystisis? That could be part of the pain and urinary issues. it causes a lot of pain. just a thought
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