It will take me an hour to get all this right, I swear.
Okay.
My aunt had endometriosis very bad, I don't know the details apart from that. She has 2 children and I don't know at what oint she developed this.
My mother was toldshe had Pelvic Inflammatory Disease about 2 or 3 times. Was told she probably wouldn't ever fall pregnant because of it. This was around age 16/17, etc. And she also had polycystic ovaries at this point I think.
She had me and my brother. Some point in between or around then she was MIS-diagnosed with adenomyosis due to her myometrium swelling or something.
They performed an ooferectomy and an hysterectomy, and examination of her removed uterus showed that it was normal, and they made a huge mistake. By the time they were going to operate on her, her appendix was about to burst and they didn't know it was going to happen because her pain she described was in her back (I forget the name, some other type of appendicitis with a name pertaining to the posterior side of the area).
Her symptoms though were not related to the appendicitis until the last 18 months of her ordeal. Before that, things were definately wrong.
She came very close to developing diabetes at the birth of my brother and doctors have described some unknown link between polycystic ovaries, endometriosis, and developing diabetes. It's not known about but it happens a lot.
The problem was that she had everything removed, and they never found out what it really was, because it wasn't adenomyosis.
My mother's liver and heart and uterus were just always a bit bigger or a bit misplaced, it was normal for her and they misdiagnosed her because of her uterus looking like it had adenomyosis in it.
Messed her up pretty bad because she was only 22 and wanted two more children.
Anyway, now it's my turn.
I am 18, and started taking the pill when I was about 14/15 because of heavy, painful and irregular periods.
Occasionally, I would bleed whilst taking the pill (not the placebos) and a coupe of times it lasted an unusual 10 or so days.
Once i bled for 3 weeks, and was switched to the highest dose of Microgynon (the pill) : 50mg, to hopefully improve my situation.
The pill never subdued pain like it was meant to, and only regulates my periods when it feels like it.
Once i had a common bacterial imbalance infection that went away with antibiotics and cream. I was then checked for pelvic inflammatory disease and polycystic ovaries and was cleared of it.
3 weeks ago I had skipped 2 periods on the pill (which goes without a hitch normally, and i have skipped upto 4 before with no problems) when I started to bleed the day after giving 0.6L of blood at the blood bank (how convenient for my history of anaemia)
The blood was heavy and normal looking, and after a week and a half of normal-like period, it went to bright red, what seemed like pure blood with no mucus thickness, and the would have chunks of blood clot in it, and then would be dark brown and thick again.
My heavy, painful period has often changed texture like this before. This time though, I bled for 2 n a half weeks (stopping only yesterday) while still taking 50mg of microgynon every day as normal.
I started seeing my doctor as soon as i started to bleed out of time. He took my blood, urine, and wanted to wait for the period to stop before he took vaginal and cervical swabs.
The blood & urine was clear of everything. AIDS, chlamydia, the bacterial infection I had before, etc.
I had an ultrasound a few days ago which showed the following (direct quote):
"PELVIC ULTRASOUND
A transabdonimal and transvaginal scan was performed.
The uterus is of normal size and anteverted. It measures 69 x 45 x 49mm.
The anterior myometrium appears normal and homogenous. However, the posterior myometrium appears heterogenous with a bulky appearance suggestive of adenomyosis.There is poor delineation of the endometrial/myometrial border.
The endometrium has a thickness of of 4.3mm.
Both ovaries were visualised and appear normal. The right ovary has a vulume of 3.4cc andthe left ovary has a volume of 2.2cc.
No evidence of of free fluid or adnexal masses."
So yeah.. I don't know if it's just because my myometrium is always like that (like my mum's was) or whether it really is adenomyosis. And if it's the same as my mum and it's not that, then WHAT THE HELL IS THIS?
The doctor did vaginal and cervical swabs, and told me he could see that my cervix was red and inflamed. He said it could be due to something that happens with healthy semen, and how it agrovates the area sometimes which is one of the causes of cervical cancer? I have had all of my cervical cancer shots though....
anyway, I haven't been with my boyfriend for about 3 weeks so surely it isn't inflamed from the semen, and is most likely (and he agrees, 'Cervical Ectopy' which doesn't really cause many problems on it's own and can be fixed with cryo freezing the flesh there..
(COINCIDENTALLY I started bleeding the day after he left and the sex ceased?? I don't know if this could mean anything?)
Anyway. I have pain after orgasms about 70% of the time, especially lately, that starts about 5-20 minutes after an orgasm and lasts 5-20 minutes.
Sorry if this is TMI, but my boyfriend and I had sex about 4 or 5 times one morning/day and when i got up and went to watch TV with him, the pain (like extremely bad and sharp period pain) was crippling, like never before. So i've guessingly concluded that the more orgasms = the more pain.
I read somewhere that this can be happening during my orgasms and because the pain receptors are turned of during orgasms, that this is why i dont feel it for a while after.
I sometimes get period-pain like pains randomly even hours after orgasm, only usually very mild, but still annoying.
Also, I usually get gas and gas pains during the start of my period which is definately related, and the same hapened to my mum, I dont know if everyone gets that.
I'm now also anaemic because of my blood loss.
i am seeing a specialist but not for another 2 months... I will be referred for a laparoscpy then.
PLEASE HELP ??