Endometriosis Community
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5889098 tn?1376225220

What Seems to be Endless Bleeding from Endometriosis

I am 22 and I was diagnosed with endometriosis about 8 months ago. For the past 3 months I have been lightly spotting consistently which my OB/GYN informed me was from my endo. I am having a laparascopy in about a week to map out exactly where my endo is growing, and if I'm not mistaken they are also excising it.

I was told that this would not stop the spotting, which is my main concern as I am not experiencing any pain from my endo. So she suggested a round of Lupron shots that she says will stop the spotting.

Has anyone else had this problem? Did you take the Lupron shots? Did it stop the spotting? Are there other options? I'm not exactly thrilled about experiencing menopause at 22 and I have a history of heart palpitations.

Also, I have been through a physical and mental nightmare for the past 8 months that has taken a real toll on my relationship with my boyfriend from the depression and low sex drive this condition has caused me.

I just want to stop spotting. Does anyone out there have any advice?
4 Responses
136956 tn?1425606272
Welcome to the endometriosis forum :)

In my opinion I wouldn't do the Lupron it will not stop the growth of Endo at all nothing does and te side effects are not worth it. I have a journal in my profile of my journey and the meds and surgeries I have had if you wanted to look at them.

I was undiagnosed for 14 yrs and now suffering for 23 yrs. excising is the best way to go so I am glad you are having that done.

Every med works differently for everyone so you will have to try a couple to see what works for you. The one I take has been a miracle for me I am on marvelon it's a bcp and I take if every day continuously no breaks unless I have breakthrough bleedin and that is usually every 3 to 4 months I then come off it for about 3 days to bleed and then go back on. It has helped my skin , the Endo and my mental state of mind. I can't come off it or my hormones go loopy and I can't live that way.

As for your relationship I totally understand my husband thank god has been so awesome with it but I do end up feeling guilty at times .

A good book to read is dr cook stop endometriosis and pelvic pain. I would get that book and when you read it you can show your boyfriend the part where the male Endo doctor explains the pain of Endo being like hundreds of bee stings inside pusing and inflamed. People read that and say wow. The book is one o the best I have ever read on Endo.

If you are on twitter there are thousands of Endo sisters in there and they are all very supportive and you can ask them anything and if you are having a bad Endo day they are there to pick you up and there to help you through it. My handle is EndEndoForever if you do I on :)

Hope some of this answered your questions :)
5889098 tn?1376225220
Thank you so much! I've seen you as the first comment for almost all of the posts in the Endometriosis community. :)

After looking into Lupron more, I really don't think this is the right decision for me. It seems like a gamble on whether or not it will work, but one this is guaranteed; you will have side effects.

I am currently taking Lo Estrin Fe 1/20, a low dosage BC pill. My body does not respond well to regular dose BC, it makes me nauseous. But this BC has been working for me, I do not have any Endo pain. I'm just dealing with the spotting which is really taking its toll on me.

I'll update after my laparascopy. I'm hoping I'll get some answers!

Thanks again for all your support. I know that all of the women who have gotten your support appreciate it endlessly!
5889098 tn?1376225220
And I just purchased Dr. Cook's book. I am ALL about researching and knowing as much as I possibly can about it, so I can be on the same page with my doctor and maybe help her as much as she's trying to help me.
136956 tn?1425606272
Sorry that I didn't respond earlier for some odd reason it didn't automatically click off "watch conversation"

That is great you got that book it really is a great book. I read it and sent it to another Endosister in England.

Please let me know how your laparoscopy goes :)

Make sure you keep all of your records too.

If you ever need to vent or ask questions or need support I am also on twitter with the handle of EndEndoForever.

There are many Endosisters there and we have a great team of support there and most times there is always someone on because the girls are from all over the world :)

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