Will this EVER get better???

[dlbmlc101505]

Hello. I am a 24 yr old newly married woman. I was diagnosed about six months ago with Stage IV endometriosis. I have had severe pain for close to three years now. I had a surgery in September to try and get rid of the endo that I had. The surgeon swears that he got rid of all of it except for what is on  my bowels and bladder. Well, I was completely PAIN FREE for almost two months. Last night I ended up in the Emergancy Room. Suprise, Suprise. Well, they found a baseball sized cyst on my left ovary. Great!! I was on Clomid this month to try and get pregnant. Well not only did it not work, but they think that is why I developed a cyst of this size. I don't know what to do anymore. My pain is back and I just want to be able to concieve before the endo comes back so bad that we can't. Has anyone on here dealt with this?? Any suggestions on where to go from here??

Thanks All!!!

[Jaxsie]

I feel for you - I am having a miserable time coping with the pain, but at least I am lucky as i do not want children. I pray that all will work out well for you and hang in there- vent more if you like!

[ALT76]

I had the exact same thing happen with the clomid!  You NEED to be monitored closely on clomid - something I only learned through the infertility forum here way back when I was just getting started.  My doctor just sent me packing with 3 months worth of pills and told me to "call him in 3 months if I didn't get pregnant" - UNBELIEVABLE!!  With clomid they need to do a midcycle ultrasound around the time of ovulation, and if the cycle is unsuccessful, than another just before you start the clomid to check for cysts.  They also absolutely MUST be doing a progesterone level blood test 7 days after you think you ovulate, to make sure the clomid worked.  I had to kick and scream just for the blood test my second month on it, when I thought I O'd cuz I thought I had all the monitoring signs pointing that way, but it did NOT work that month - so who knows if it worked the first month either!??  Then I had to kick and scream the following month cuz I found out about the u/s thing.  They said "we don't DO ultrasound monitoring" (in a snotty voice).... yeah, and I ended up in the ER that month with a ruptured cyst!  And AGAIN two months after that during my fifth cycle on clomid with ANOTHER ruptured cyst!  You NEED to make sure they are monitoring you properly on this stuff.

I'm terribly sorry about it all - I have endo too (just had my second lap in 10 months on Halloween) and in the past couple of months I've had 3 cysts, including a grapefruit sized one that I was supposed to have surgery for, but it ended up rupturing (the other two did too).  BELIEVE ME, I KNOW how frustrating it can be!!!  I took a TTC break to try to lose weight to help my chances TTC, and I haven't been able to exercise at all because I always had cysts and my endo pain came back with a vengence!  That's why I had the second lap.  I have PCOS and a history of cysts, so that's why I get so many.  But the clomid can do it for anyone - regardless of whether you have PCOS, normally get cysts or not.  I know it's painful, and upsetting... I'm so sorry.  At this point I think you just have to wait it out and decide if you want to try again.  If you try again you need to make sure they are monitoring you EVERY step of the way!  Maybe they are, but my guess is if they found the cyst in the ER that they aren't doing everything.  

Hang in there... and lean on us if you need to.  I'm hear to listen or if you have any other questions - just ask!  I have a little bit more about my history in my profile which may answer some questions for you.

good luck!
-amy