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Avatar universal

could it be?

i have been diagnosed with several conditions: HPV in jan10, genital herpes aug09, endometriosis 08
so i am good and lost right now... the symptoms that i have been having since my first herpes outbreak in aug 09 are not going away.  its been a yr now and i still am having vaginal burning, vaginal pressure, and pain.  the burning comes and goes but the pain and pressure are ongoing.  i am on 1gram of valtrex daily.  but when i do have a outbreak it gets alot worse alone with the itching, aching, and pain.  i have been to my reg gyno, a gyno oncologist which has ruled out cancer cause of the dysplasia caused by the hpv, and an urogynecologist.  we are trying to resolve the ongoing pressure and pain.  i have had pelvic u/s and vaginal u/s done, normal results.  plenty of PAPs and copos.  urinalysis showed no sign of infection, or blood.  i do not go to the bathroom often.  and it does not specifically burn just when i use the bathroom, only if i have lesions.  the burning comes and goes without urinating.  the question is could it be IC because of the constant pressure and pain in the vagina? not often, but sometimes i get a weird spasm feeling in my vagina too.  but the thing is that i dont have urine freq. or is it endometriosis that has grown back somewhere else that is causing me to feel pressure? the endo surgery i had was in 08 and was just in my left ovarie which i had stabbing pains in that area.  i am trying to rule out anything before i have to go through the endo surgery again and its not endo.  or could it be vaginal nerve pain caused from the herpes?  which i get nerve sensations on other parts of my body since the herpes.  these are the options that i have been given by my drs and i donot know which way to go???  any way anybody can help PLEASE!!!
Thanks
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136956 tn?1688675680
You know whats funny?  

Everytime I google certain symptoms I keep coming back with Herpes and adhesions. I have never been diagnosed with herpes down there but I do get it on my lip and that just started last year, but I think I had the virus for a very long time.  

I really think that it could be adhesions.  
Helpful - 0
Avatar universal
yea i still donot have any relief from my symptoms....the drs donot know why i am having burning, itching, aching, pain and pressure down there all the time....they are going alone with the herpes outbreaks which makes sense but mine is not only for outbreaks, but its all the time.
Helpful - 0
136956 tn?1688675680
Well mine came out just like yours, normal!!  Argh. Sometimes I feel like this is all in my head sometimes.  I know the things that trigger it and maybe I need to avoid them all together.  

Did it end up being the Herpes that was causing that for you?
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Avatar universal
well i had my cone biopsy for my hpv done and the cystocopy last monday.  the bladder is fine, so my constant pressure, burning, irritation is not coming from IC.  apparently its coming from my herpes(burning, irritation) still cause we cant fine anything else.  didnot do another endo scope but i Am going to guess that my pressure, pain is coming from that.  also my hpv is causing the precancerous cells that hopefully my dr got it all out this time.  i can scream with all these female problems...ughhh
how was your test?
Helpful - 0
136956 tn?1688675680
I had the appointment and I am going to get a cystocopy done November 26th.

I just realised that I wrote endoscopy earlier..duh!!

He has to rule out everything to diagnose IC.  So we will see.  keep me updated with your test :)
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Avatar universal
any news from your uroligist about the pressure being from IC? just wandering if you ran any of the tests yet?  for IC or endo
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136956 tn?1688675680
awesome thanks
Helpful - 0
Avatar universal
yea i think i will be getting mine done begginning of nov. so i will keep you posted
Helpful - 0
136956 tn?1688675680
I had endo all over the bowel, bladder, stomach, kidneys, ovaries, tubes etc..  I have an appointment next week with the urologist but I am sure that appointment is just to ask questions.  I will have to wait to get the endoscopy done.  

Message me and let me know what they find with you :)
Helpful - 0
Avatar universal
so i am guessing it has to be ic or endo since we both have the same pressure in the vag. area and both have the same options.. well if i find out before you do, i will let you know.  i will have a bladder scope done soon to check this out. where was your endo found at?

Thanks so much for your input, keep me posted.  good luck
Helpful - 0
136956 tn?1688675680
So sorry to hear that you are going through all of this.  

I was diagnosed with Endo in 2006 and 3 yr Dormant Gonorrhea in 2010.

I have had nothing but problems since the diagnoses of the Gonorrhea. I have pain and itchiness all the time down there for no reason. I was retested and nothing.

As for the pressure pain I do get that and I am not sure what it is. I finally have an appointment with a Urologist to find out why I get that pain. I am sure it has to do with Endo and possibly be Interstitial Cystitis which is also linked to Endo.  
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