normal hormone levels but irregular periods, etc

[sawabears]

please help!! i'm starting to feel like a hypercondriac!

Ive been diagnosed with mitral valve prolapse, mitral valve regurgitation and tricuspid regurgitation .
heart / digestive system problems, thyroid cancer, ms, lupus do run in my family.

these are some of my symptoms i've been having over the years!
some are new but just seems to be getting worst!

severe fatigue
muscle stiffness
muscle spasms (on both sides of body, rarely painful)
random body tics/jerks
severe migraines
joint/bone pain
memory issues
severe shortness of breath
random dizziness/lightheadness
weight gain and weight loss
random nausea (mainly while eating..)
eyes jerking/spasms (side to side) super fast and only last a few seconds.
random sharp shooting abdominal pain (above belly button and in ovaries)
hands randomly  become red, burns, and itches super bad!!  sometimes swell up!
infertility
heavy and irregular menstrual!!
it started when i was around 13 and first got my menstrual, i thought it was normal for a long time.
i wouldn't bleed for a few months (2-5) then i will bleed (severely) for 4-8 months none stop. (no joke)
i go threw a pad + tampon in an hour or two!! its insane. i get blood clots the size of my palm (2-4 inches around)
the pain is unbearable.. i can't even walk or stand up some days. (if i do i risk bleeding threw everything in just seconds.)
ive came close a few times to having a blood transfusion but got lucky with IVs .. i feel like i live in the ER during my menstrual..


i had surgery laparoscopy for endometriosis.  
only thing they found was that my lower intestine and rectum were red and inflamed. (i do get light rectal bleeding at times) ><
also that my lung collapsed 2 times during and my ovaries and uterus are on the big side but still in normal range.


sense then i've had thyroid and hormonal levels checked and all are normal!!!!!!
they are trying to put me back on birth-control pills but i've been on them for over 2 years and didnt help at all.
plus i'm at more of a risk with bloodclots cause of my heart valves.



i'm thinking about getting my ovaries removed at this point... it's so bad i've even lost jobs.
i really don't know what it could be... please any ideals would really help!


i know this is alot... i'm only 24 years old.

[achilles2]

That is fine that you added me as a friend. :o)

I sent you a message

[sawabears]

oh, wow! that is really interesting!!
maybe there is a little hope! i would love to find out more about this!
they never told me my levels but i'm gonna pick up my medical records very soon.
i can get back at you with the numbers if you like? also, i don't believe they did a biopsy. =/

ps.
i added you as a  friend, hope thats ok?! =]

[achilles2]

I cannot send you a message. I know of some doctors depending on where you are located. I can recommend someone in a couple of states or regions. If you are interested please let me know.

[achilles2]

Do know your thyroid levels or did they tell you that all is in range?

They are learning that the thyroid ranges are inaccurate. To learn about the thyroid I recommend getting the "Thyroid Solution" the author, a thyroid expert, also has a website-- www.thyroidwellness.com.

Also when you had your lap did they do any biopsies? If not you might have more endo than you think. A biopsy is the only way to confirm if there is any endometiriosis.

achilles2

PS I will also send you a message