I just finished reading your comments. It's good you're going to see your
doctor tomorrow. My doctor has taken to saying, what brings you here
today. One suggestion, even though you may think its' persistant genital
syndrome, I wouldn't tell the doctor that. Personally, I just stick to the
facts, I don't offer a suggestion of what it might be. That's the doctor's
job to figure out what's going on based on the symptoms I describe.
The doctor is the professional and the one who has studied medicine
etc for many years. Hopefully, your doctor will help you figure out what's
going on. I wish you well. Don't give an opinion, just stick to facts. Eve
First. do you have endometriosis? This could help me answer your question.
It is possible that if you do have endo and you have had a surgery that it could be scar tissue or similar to what I had was a giant cell lesion on my bladder flap which in layman terms is carbon residue from previous laser on my bladder. My ureters were also entrapped with scar tissue and sort of what I was feeling is what you are saying.
The clitoris has the most amount of nerves running to it so it could be an entrapped nerve maybe in the pelvic area.
Also it could be IC which is painful bladder syndrome.
Let me know more details
Hi there, firstly...eve, my doctors always ask me first what I think I have myself, strange I know but this is a fairly new thing they are doing, probably trying to see how well we recognise our symptoms or something? Tickled...I posted in this forum as I was looking at it at the time of posting as I was googling my symptoms which took me to this forum. I havent had any tests for endo but have been told I have endo cells on my cervix, I have a history of pelvic inflammatory disease and also recently had a bleed on a cyst on my ovary..although again this was never explored further after being in hospital. So there are possibilities I have it? The doctor however diagnosed a lower uti, although was very reluctant to talk about the symptoms in vagina. I have just finished a 3 day course of antibiotics with no relief. I am still struggling to relax my pelvic floor muscles and I still have like a fluttery feeling in my clitoris. Ive had enough now, I just need some relief.
The PID could have caused some damage. The same thing happened to me. I had surgery recently because of scar tissue and Endo complications and my ureters were attached to my bowel and bladder. I was have urethral spasms which are in the same area as the clitoris and it would be almost like a good feeling and then turned painful.
Were you able to find relief for your symptoms? Did you finally receive a diagnosis? I am curious because what you have described is exactly my situation as well. Endo cells on cervix, tickling in vagina, stimulated feeling that will not go away. I have been through two rounds of antibiotics for UTI's which are not the problem. My next trip is to the urologist and then I am going to the gynecologist. This is driving me crazy!
curious if you ever solved your clitoral spasms, I'm having them as well. I did kegal exercises last night. I was wondering if they are muscle spasms brought on from over exercising? Let me know what you think
I am not sure if this is true or not but I thought I heard that Kegal exercises make it worse
I am so glad I am not alone, I have the exact same problem, but over the past 4 years, I have had a DX of Endometriosis, tumors on my uterus, ovarian pre cancer cells, ovarian cysts, I have had an ablation, tumor removal, and finally ended up with a complete hysterectomy, as these issues had continued to be problematic even after the ablation, and even after all this, the nagging feeling of clitoral throbbing is at its worse, It almost feels like its a nerve issue, I also have full body Neuropathy, and Spinal Stenosis, and thought maybe this problem could be more of a nerve damage issue, I mentioned it to my doctor and she replied "Huh that's weird" also mentioned it to my Gyno, who said its probably just from the surgery, it should go away, that was a year and a half ago, and its at an all time high, also noticed too that stressful situations, anxiety make it worse as well? I also only half empty my bladder when I go potty, and have to force the rest out with pushing, I would like to get to the bottom of it myself as it's VERY annoying!, Any thoughts?
I have the same and your story sounds like mine. I take cymbalta for the nerve pain, and started doing pelvic floor therapy for Pelvic floor dysfunction which sounds a lot of what might be going on with you.
Hi, did you ever find out what it was? I've been going through this for years now. It's exactly as you described it. I've had ultrasounds and labs done and nothing.
I'm having this same issue for the past 2 weeks. I feel a pressure on my lower pelvic area and a constant need to urinate. Every hour or so I keep getting these spasms that feels like its near my clitoris. Just within the past few days I've been in a constant state or arousal and masterbation makes it worse. I can't even drive in the Car because the vibrations drives me mad. It keeps me up at night. I'm in tears and all my googling brings up symptoms of PGAS. I can't imagine feeling like this forever. I'm going crazy already! The only thing that seems to help is by kind of forcing my lower muscles to relax. Occasionally I feel a light stab sensation in my clitoris.
I had this problem. After seeing a urologist I got refered to a physical therapist who is trying to release the pelvic floor muscles as that is what can cause all these symptoms. It's completely treatable. I got mine from anxiety. Worst thing you can do is google and stress yourself out about it. Good luck
It's definitely the same as I have- PGAD is the acronym. It's the worst thing in the world to get, and it only gets worse. I have had it for three years and am ready to jump off a tall building- it's ruined my whole life. No cure and doctors all suck. My life is ruined and I just want to die it's so invasive and horrible to have every day of your life.
The Dutch are very progressive and there is an excellent website for anyone needing help https://pass.nl.
Interstitial cystitis. Ive had it for several years. Feeling is like you constantly have to pee but nothing or very little comes out, yet you still have that feeling. And the constant arousal. IC has been described as either an inflammation of the bladding lining or a loss of elasticity in the lining - may be the same thing. For a lot of women (mostly women), it also involves terrible pain. For me, its just the symptoms described here. Which are plenty. Constant arousal is not fun. Sometimes impossible to concentrate on what Im doing. Its been much worse since I had foot surgery and have to sit all day, rather than work at a standing desk. Find a urogynecologist, preferably a woman. Theres an IC association. IF you have this, do NOT drink cranberry juice. Makes it worse. Theres an IC diet, which is about the only thing that helps. No acidic food - tomatoes, citrus, and a bunch of other stuff. Youll find it online. If this is what you have. Sounds exactly what I do.
Hello ladies! I was wondering does anyone get vaginal spasms? When i say that i mean it feels like a spasm/twitch in the area around clitoris/urethral. It comes suddenly and randomly without warning. I have been to the urologist and had a Cystoscopy/ultrasound done and everything is fine no inflammation. I still get the spasms and occasionally I feel twinges, not from my vaginal opening but it feels like its inside my inner vagina lid if that makes sense..still searching for answers to see why I am getting them
Hi ladies! I have experienced all of the symptoms listed above and am here to tell you there IS HOPE. I have been on antibiotics for UTIs I did not have, taken prescription medication for bladder spasms (vesicare and uribel), spent hundreds on acupuncture and FINALLY found my relief homeopathically. I've never been one to look for "natural" remedies, but instead take the quick route of medications and expensive doctors visits, but when nothing would alleviate my pain and I researched every day for months I found the answer- CANDIDA! This is a yeast overgrowth that directly effects the bladder. Most of us have been on antibiotics which makes it even more likely to have the overgrowth besides the fact that most people love sugar which is what candida feeds on. Please, please go to your Whole Foods or order online Cantharis 30c ( less than $10.00), take D-mannose to rule out any possibility of hidden Ecoli in the bladder walls, and give the candida dirt a try. Google "IC cure" and you will see the research article and proof of a life we all thought we lost.