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Does chronic headaches and epilepsy you have any correlation?

I have been treated for tension headaches and migraines since 2009. I was diagnosed with JME when I was 13. I'm currently on 150 topamax and 500 lamictal for seizures. I have tried antimigraines, analgesics, muscle relaxants, nonsteroidal-anti-inflammatory and steroids, ssnri antidepressants and obviously acetaminophen and aspirin for headaches . I have one every single day but the severity of it varies. Within the past few days  I have noticed slight shaking and weakness in my hands. I have had Botox, never block injections and sphenocath. My MRI CT scan and blood work are all clean. I often have to go to the ER for pain. They give me Benadryl cocktail among other IV meds. They end with Diludid which helps but when is wears off the headache immediately comes back. I've tried massage therapy, chiropractic,  acupuncture, diet change and exercise. Nothing has ever fully relieved my headache. I just got out of the hospital after 3 weeks. My neurologist is out of ideas. He referred me to Mayo and even they said there was nothing they could do. My neurologist is doing another round of Botox and referring me to a headache center. I didn't know if the Epilepsy could possibly contribute? I would really appreciate any help or advice anyone has to offer.
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Avatar universal
Hi there! I also have JME! I have tried every medicine available and am now on keppra 3,000 daily. My mri showed I have a chiari malformation. I have also had a constant headache for as long as I can remember. When was your last MRI? The problem with these epilepsy meds is that sometimes the the cure is worse than the cause. Headaches are the number 1 side effect! Which is strange because topamax is also used to treat headaches. I would suggest talking to your doctor about trying keppra xr. Lamictal is a great drug, but it also exacerbates myoclonic jerks, which are a warning a big seizure is coming. Don’t give up hope. I suggest a descriptive headache diary. The answer will be in there somewhere!
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