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Neck Jerks with JME

Hi
I have Juvenile Myoclonic Epilepsy and am recently getting neck jerks. The Jerks or twitches are always from left to right and only last a second or so. Nobody seems to notice them but I definitely notice them. WhenI was a teenager i got jerks in my arms but they went. I am female 41 yr old. My current medicine is 300 mg lamictol. My neurologist has just increased my dose by 50mg to see if that helps. He said he not completely sure if jerks are directly related to epilepsy. Just worried it could be something else like torticollis. Any help would be appreciated!
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Avatar universal
Hi! I have JME as well and am 16 years old. Thr doctors said i've had it since i was 6, but they never diagnosed it until i was 10. This is due to them saying it was A.D.D, because i would stare off in the distance, however, it was seizures all along. My seizures were also partially caused by a sleep medicine i took when i was 6. I used to have twitching in my face, but it went away. I have no more twitching. The twitching is due to the seizure activity and is common with JME patients. I take trileptol 600mg. I'm positive that the twitching is from the seizures. I could be wrong though. I hope i was helpful :)
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