I'm not looking for a diagnosis or anything, just some ideas on what to ask my doctor about the next time I see him.
In 2000 I had a lobectomy in my left Temporal lobe. Short version of the story, I was in a skiing accident when I was 13 that shattered my skull. Years later we realized I had epilepsy. After years past, lost of different meds and treatment, the doctor realized I was in need of surgery. Approximately 2 years post-op I started having terrible “migraine” like headaches. They had a major impact on my life. I tried new meds, treatment, even acupuncture, but nothing worked. They just continued to last longer and get worse. Now in 2012 I still have them. All day, every day with flare ups as you suggested that feel like a brain freeze. I still work everyday and function as a father but the impact, I believe, is long term. The best conclusion I have gotten was from a Doctor that was a pain specialist and had tried numerous tests. He said “It may just be the result of surgery and you will have to deal with it”. I take Amitriptyline and it helps with depression and anxiety. I know this doesn’t solve it but the reality that the Doctor (and research) gave me help me cope. Let me know if you have any results with any meds or Doctors. Take care!