Please read...feeling very scared and unsure what to do?

[tami91]

I am a 44 yr old female with Juvenile myoclonic epilesy and Generalized Seizure disorder. Started the Myocloics Around puberty, the Tonic clonics at 17. Needless to say, been on alot of Meds. I am currently on Keppra and Topiramate and have just been told my latest tests are showing major kidney damage from the topiramate. I have been on these two meds since 2002. I have to admit, reading all this is very scary. NO Other Meds have worked to control my seizures ! PERIOD!! Plus I have severe Migraines and Short term memory is almost gone in a matter of seconds. What is a girl to do?
Signed....
Tami....Feeling Scared

[scubadog]

Hi,

I am currently on topiramate for generalized tonic clinic seizures but  neuro
Changing to lamotrigine due to cognitive side effects. I hear you!  Topiramate
Is horrible!  Just hope lamotrigine keeps me seizure free. Getting level drawn
On the 26th & if neuro likes it can start taper of topiramate or as it is known,
"Dopamax".  Best of luck with drug, see what your neuro says about lab results.

[Arti Sharma, M.D.]

Hello,
Any drug is usually prescribed if the benefits outweigh the risks .If your antiepileptic are causing kidney damage you may need dose titration or an alternative drug. It is important to know your detailed medical history, history of seizures and drug dosage and test results before advising you. It is advisable to consult your attending neurologist and discuss your concerns. Do write to me again on how you are doing.
Best wishes and regards!